Evidence map›Paper›PMID 38193428›Full record

ArticleChronic respiratory disease

Navigating the COVID-19 pandemic: Experiences and self-management approaches adopted by people with interstitial lung disease.

Gabriella Tikellis, Tamera Corte, Ian N Glaspole, Nicole S L Goh, Yet H Khor, Jeremy Wrobel, Karen Symons, Lisa Fuhrmeister, Laura Glenn, Shiji Chirayath and 3 more

Abstract read
In one paragraph

Article in Chronic respiratory disease. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Gabriella TikellisDepartment of Immunology and Pathology, Central Clinical School, Monash University, Melbourne, VIC, Australia.ORCID 0000-0002-5154-6658
Tamera CorteNHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, NSW, Australia.
Ian N GlaspoleDepartment of Immunology and Pathology, Central Clinical School, Monash University, Melbourne, VIC, Australia.
Nicole S L GohDepartment of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia.
Yet H KhorDepartment of Immunology and Pathology, Central Clinical School, Monash University, Melbourne, VIC, Australia.
Jeremy WrobelAdvanced Lung Disease Unit, Fiona Stanley Hospital, Perth, WA, Australia.
Karen SymonsDepartment of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia.
Lisa FuhrmeisterDepartment of Respiratory and Sleep Medicine, Austin Health, Melbourne, VIC, Australia.
Laura GlennRespiratory Medicine, Royal Prince Alfred Hospital, Sydney, NSW, Australia.
Shiji ChirayathAdvanced Lung Disease Unit, Fiona Stanley Hospital, Perth, WA, Australia.
Lauren K TroyNHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, NSW, Australia.
Bill KingDepartment of Immunology and Pathology, Central Clinical School, Monash University, Melbourne, VIC, Australia.
Anne E HollandDepartment of Immunology and Pathology, Central Clinical School, Monash University, Melbourne, VIC, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPeople with interstitial lung disease (ILD) were deemed more vulnerable to the SARS-CoV-2 virus and isolated as a means of reducing risk of infection. This study examined the impact of the pandemic on daily life, psychological wellbeing and access to healthcare and identified approaches undertaken to remain safe.

methodsFour specialist clinics in tertiary centres in Australia (Victoria: two sites; New South Wales: one site; Western Australia: one site) recruited patients with ILD during an 8-week period from March 2021. Semi-structured telephone interviews were conducted with transcripts analysed using principles of grounded theory.

resultsNinety participants were interviewed between April and December 2021. Participants were predominantly female, former smokers with an average age of 66 years. IPF and connective tissue-ILD being the most common subtypes. Five main themes were identified: vulnerability reduced social interaction and isolation, access to healthcare services and support, staying active, emotional and psychological impact. Self-management strategies included staying active both physically and mentally. DISCUSSION: Self-management was key to managing the impact of the pandemic. In combination with advances in technology, implementation of strategies for monitoring wellbeing and support for self-management provides an opportunity to leverage the lessons learnt to ensure a more individualised model of care for people with ILD.

Indexed as

COVID-19Lung Diseases, InterstitialSelf-ManagementAgedFemaleHumansMalePandemicsSARS-CoV-2COVID-19 pandemicInterstitial lung diseaseisolationpulmonary fibrosisqualitativeself-management

Identifiers

PMID38193428
PMCPMC10777803

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.