Evidence map›Paper›PMID 38193135›Full record

ArticleFrontiers in psychiatry2023

Health-related quality of life in family caregivers of autistic adults.

Sophia Dückert, Sabine Bart, Petia Gewohn, Hannah König, Daniel Schöttle, Alexander Konnopka, Pascal Rahlff, Frank Erik, Kai Vogeley, Holger Schulz and 2 more

Abstract read
In one paragraph

Article in Frontiers in psychiatry, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Quality of life in caregivers of toddlers with autism features.Research in developmental disabilities · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Sophia DückertDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Sabine BartDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Petia GewohnDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Hannah KönigDepartment of Health Economics and Health Services Research, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Daniel SchöttleDepartment of Psychiatry and Psychotherapy, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Alexander KonnopkaDepartment of Health Economics and Health Services Research, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Pascal RahlffDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Frank ErikDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Kai VogeleyDepartment of Psychiatry, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany.
Holger SchulzDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Nicole DavidDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Judith PethDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Family members of autistic individuals often provide support for their autistic relative throughout the lifespan which can lead to massive burden themselves. Reduced health-related Quality of Life (HRQoL) in family caregivers is assumed; however, only a handful studies on the HRQoL of family caregivers providing care to adult relatives exist as opposed to autistic children. Thus, the current study aimed to (i) investigate the current state of physical and mental HRQoL of family caregivers of autistic adults compared to the general population, and (ii) examine caregiver-related (e.g., age, subjective caregiver burden) and care recipient-related variables (e.g., symptom severity, utilization of formal services) explaining variance in the caregivers' HRQoL. Methods: Results: Family caregivers of autistic adults reported significantly lower physical ( Discussion: Findings highlight the need to consider HRQoL (and caregiver burden) of family caregivers of autistic adults in several healthcare settings to monitor a potential comprised health status in early stages, with the long-term goal to improve family caregivers' HRQoL.

Indexed as

adultsautism spectrum disordercaregiver burdenfamily caregiversmental wellbeingquality of life

Identifiers

PMID38193135
PMCPMC10773769

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.