ArticleThe British journal of general practice : the journal of the Royal College of General Practitioners2024
Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-PALL): a qualitative interview study.
Article in The British journal of general practice : the journal of the Royal College of General Practitioners, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
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Who cites it
6 citing papers in PubMed, 2 syntheses or guidelines pooled it, 4 citations in OpenAlex.
- Improving communication of prognostic uncertainty in advanced illness: a realist review.BMJ open · 2026Pooled it
- Equitable inclusion of patients with cancer on the palliative care register: a systematic review in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Pooled it
- Cancer patients' insights and experience of palliative and supportive care in the UAE: a qualitative study.Frontiers in oncology · 2026Article
- Primary care must be prioritised to achieve universal palliative care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Article
- The Practices of Portuguese Primary Health Care Professionals in Palliative Care Access and Referral: A Focus Group Study.Healthcare (Basel, Switzerland) · 2025Article
- Who 'needs' community palliative care? Prognosis-centred registers disadvantage frail older people.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024Article
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPalliative care improves quality of life for people with life-threatening illnesses. There are longstanding inequalities in access to palliative care, with many people never identified as having palliative care needs, particularly frail older people, those with non-malignant disease, and people from ethnic minority backgrounds. Little is known about the process of identification of palliative care needs from a patient perspective.
aimTo provide new understanding into patient views and experiences of the process of identification of palliative care needs, and to explore the impact of identification on health care, if any, from a patient perspective. DESIGN AND
settingA qualitative interview study undertaken with patients and family carers in a major UK city.
methodSemi-structured interviews were carried out with patients (and/or family carers) identified as being on general practice palliative care registers. An inductive thematic analysis was conducted to explore the data.
resultsEleven participants were recruited: eight patients and three family carers. The following three interrelated themes were identified: 1) misconceptions about palliative care and unshared prognostic uncertainty hinder the identification of palliative care needs; 2) a compassionate, timely approach is required for identification of palliative care needs, with or without an identification tool; and 3) identification of palliative care needs is beneficial where it leads to proactive holistic care.
conclusionA compassionate approach, sharing of prognostic uncertainty, and proactive primary care are key to timely, beneficial identification of palliative care needs. Future policy should ensure that identification is an adaptable, personalised process to meet the individual needs of people with advanced serious illnesses.
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Registered trials
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