Evidence map›Paper›PMID 38188534›Full record

ArticleJournal of patient experience2024

What's in This For You? What's in This For Me?: A Win-Win Perspective of Involving Study Advisory Committee Members in Palliative Care Research.

Juanita Booker-Vaughns, Dawn Rosini, Romilla Batra, Garrett K Chan, Patrick Dunn, Robert Galvin, Ernest Hopkins, Eric Isaacs, Constance L Kizzie-Gillett, Margaret Maguire and 12 more

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of patient experience, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03325985 (Emergency Medicine Palliative Care Access), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03325985 nacompletednot on this map

Emergency Medicine Palliative Care Access (EMPallA)

TypeinterventionalSponsorNYU Langone HealthRan2018 to 2023Enrolled1,606ConditionsAdvanced Cancer, End Stage Organ FailureArmsNurse-led telephonic case management, Facilitated,outpatient specialty palliative care
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors.

Juanita Booker-VaughnsCollege of Medicine, Charles R. Drew University of Medicine & Science, Los Angeles, CA, USA.
Dawn RosiniCollege of Medicine, University of Florida Shands Hospital, Gainesville, FL, USA.
Romilla BatraSenior Care Action Network (SCAN) Health Plan, Long Beach, CA, USA.
Garrett K ChanHealthImpact, Oakland, CA, USA.
Patrick DunnAmerican Heart Association, Dallas, TX, USA.
Robert GalvinThe Blackstone Group, New York, NY, USA.
Ernest HopkinsThe Phoenix Group Foundation, Atlanta, GA, USA.
Eric IsaacsDepartment of Emergency Medicine, University of California San Francisco, San Francisco, CA, USA.
Constance L Kizzie-GillettLillie's Circle of Care, Streamwood, IL, USA.
Margaret MaguireCambia Health Solutions, Portland, OR, USA.
Martha NavarroCollege of Medicine, Charles R. Drew University of Medicine & Science, Los Angeles, CA, USA.
Neha Reddy PidatalaAmerican Cancer Society, Atlanta, GA, USA.
William VaughanPatient Advocacy, Fairfax, VA, USA.
Sally WelshHospice and Palliative Nurses Association, Carnegie, PA, USA.
Pluscedia WilliamsCollege of Medicine, Charles R. Drew University of Medicine & Science, Los Angeles, CA, USA.
Angela Young-BrinnCollege of Medicine, Charles R. Drew University of Medicine & Science, Los Angeles, CA, USA.
Kaitlyn Van AllenRonald O. Perelman Department of Emergency Medicine, New York University Grossman School of Medicine, New York, NY, USA.
Allison M CuthelRonald O. Perelman Department of Emergency Medicine, New York University Grossman School of Medicine, New York, NY, USA.ORCID https://orcid.org/0000-0002-9978-6706
Rebecca Liddicoat YamarikDepartment of Medicine, Tibor Rubin Long Beach Veteran Affairs, Long Beach, CA, USA.
Mara FlanneryRonald O. Perelman Department of Emergency Medicine, New York University Grossman School of Medicine, New York, NY, USA.
Keith S GoldfeldDepartment of Population Health, New York University Grossman School of Medicine, New York, NY, USA.
Corita R GrudzenDivision of Supportive and Acute Care Services, Memorial Sloan Kettering Cancer Center, New York, NY, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Study advisory committees (SACs) provide critical value to clinical trials by providing unique perspectives that pull from personal and professional experiences related to the trial's healthcare topic. The Emergency Medicine Palliative Care Access (EMPallA) study had the privilege of convening a 16-person SAC from the project's inception to completion. The study team wanted to understand the impact this project had on the SAC members. In this narrative, we use reflective dialogue to share SAC members' lived experiences and the impact the EMPallA study has had on members both personally and professionally. We detail the (1) benefits SAC members, specifically patients, and caregivers, have had through working on this project. (2) The importance of recruiting diverse SAC members with different lived experiences and leveraging their feedback in clinical research. (3) Value of community capacity building to ensure the common vision of the clinical trial is promoted.

Indexed as

engagementpalliative carestakeholdersstudy advisory committee

Identifiers

PMID38188534
PMCPMC10768616

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.