Evidence map›Paper›PMID 38185654›Full record

ArticleHealth and quality of life outcomes2024

Exploring older people's understanding of the QOL-ACC, a new preference-based quality-of-life measure, for quality assessment and economic evaluation in aged care: the impact of cognitive impairment and dementia.

Kiri Lay, Matthew Crocker, Lidia Engel, Julie Ratcliffe, Rachel Milte, Claire Hutchinson

Abstract read
In one paragraph

Article in Health and quality of life outcomes, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Article
  4. Article
  5. Article
  6. Article
  7. Cognitive interviewing for assessing the content validity of older-person specific outcome measures for quality assessment and economic evaluation: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  8. Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Kiri LayHealth and Social Care Economics Group, Caring Futures Institute, Flinders University, GPO Box 2100, Adelaide, Adelaide, SA, 5001, Australia. kiri.lay@flinders.edu.au.ORCID http://orcid.org/0000-0003-1077-3771
Matthew CrockerHealth and Social Care Economics Group, Caring Futures Institute, Flinders University, GPO Box 2100, Adelaide, Adelaide, SA, 5001, Australia.ORCID http://orcid.org/0000-0002-6207-7850
Lidia EngelHealth Economics Division, School of Public Health and Preventive Medicine, Monash University, Melbourne, VIC, Australia.ORCID http://orcid.org/0000-0002-7959-3149
Julie RatcliffeHealth and Social Care Economics Group, Caring Futures Institute, Flinders University, GPO Box 2100, Adelaide, Adelaide, SA, 5001, Australia.ORCID http://orcid.org/0000-0001-7365-1988
Rachel MilteHealth and Social Care Economics Group, Caring Futures Institute, Flinders University, GPO Box 2100, Adelaide, Adelaide, SA, 5001, Australia.ORCID http://orcid.org/0000-0001-7533-6260
Claire HutchinsonHealth and Social Care Economics Group, Caring Futures Institute, Flinders University, GPO Box 2100, Adelaide, Adelaide, SA, 5001, Australia.ORCID http://orcid.org/0000-0003-4289-8886

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundQuality-of-life is an essential outcome for quality assessment and economic evaluation in health and social care. The-Quality-of-Life - Aged Care Consumers (QOL-ACC) is a new preference-based quality-of-life measure, psychometrically validated with older people in aged care. More evidence is needed to inform the self-report reliability of the QOL-ACC in older people with varying levels of cognitive impairment and dementia.

methodsA think-aloud protocol was developed and applied with older residents. The Mini Mental State Examination (MMSE) was applied to assign participants to no cognitive impairment (NCI - MMSE score ≥ 27) and cognitive impairment (MMCI - MMSE score < 27) subgroups. Three independent raters utilised a Tourangeau survey response model-based framework to identify response issues. Data were compared across cognition subgroups and synthesized using a 'traffic light' grading to classify frequency and type of response issues. Gradings were utilised to assess self-report reliability according to different levels of cognitive impairment.

resultsQualitative data from 44 participants (NCI = 20, MMCI = 24) were included for analysis. Response issues were more evident in the cognitive impairment subgroup than the no cognitive impairment subgroup. All participants who received a 'red' grade had an MMSE score of < 20 and 66% of 'amber' grades occurred in the cognitive impairment subgroup.

conclusionsThe QOL-ACC is able to be completed reliably by older residents with an MMSE score > 17. Future research is needed to assess the generalisability of these findings to other preference-based quality of life instruments and for older people in other care settings including health systems.

Indexed as

Cognitive DysfunctionDementiaAgedCost-Benefit AnalysisHumansQuality of LifeReproducibility of ResultsAged careCognitive impairmentSelf-reportThink-aloud

Identifiers

PMID38185654
PMCPMC10773014

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.