ArticleFrontiers in public health2023
Formal social support and quality of life of caregivers with autistic children: a large-scale nationwide survey in China.
Article in Frontiers in public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- Examining the daily experiences of parents caring for children with rare neurogenetic conditions using over 18,000 ecological momentary assessments.Scientific reports · 2026Article
- Family-Centered Rehabilitation Care for Children with Cerebral Palsy in Saudi Arabia: Perceived Helpfulness of Formal and Informal Family Support.Healthcare (Basel, Switzerland) · 2026Article
- Factors related to quality of life in caregivers of children with autism spectrum disorder: emphasizing challenges in the context of Eastern China.BMC public health · 2025Article
- Quality of life in caregivers of toddlers with autism features.Research in developmental disabilities · 2025Article
- The perceived social support and its relationship between occupational balance and family functioning in rehabilitation among Turkish parents of pre-school children with autism.International journal of developmental disabilities · 2025Article
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Authors and funding
8 authors.
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Abstract
Introduction: Caregivers of children with autism spectrum disorder (ASD) were reported poor quality of life (QOL). Formal social support might improve the QOL of caregivers, however, limited research to date has focused on this association in China and formal social support for this group is conspicuously lacking. The study was aim to understand the QOL in male and female caregivers with ASD children in China and to explore the relationship between QOL and formal social support for caregivers with children with ASD through a large-scale nationwide survey. Methods: An online questionnaire was used to conduct a cross-sectional study with a sample of 6,120 caregivers of children with ASD. Relationship between Quality of Life and several potential predictors is measured and analyzed. Quality of life were measured by Medical Study Short-Form Health Survey version 2 (Chinese version). Multivariate logistic regression analysis was used to analyze the factors affecting caregivers' QOL. Results: The results revealed that the QOL of caregivers of autistic children in China was poor especially male caregivers. Social support was a positive predictor. More importantly, formal social support from rehabilitation institutions can improve caregivers' physical QOL. Caregivers' satisfaction with the rehabilitation institutions affecting their physical and mental QOL. Conclusion: The formal social support provided by rehabilitation institutions plays a positive role in improving the quality of life of caregivers.
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