ArticleDementia (London, England)2024
Life story templates in dementia care: Ambiguous direction and purpose.
Article in Dementia (London, England), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
6 citing papers in PubMed.
- Before, Behind and Beyond: Life Stories and Identity in Dementia Care.Sociology of health & illness · 2026Article
- Perspectives of Healthcare Providers and Managers on Older Adults' Transition to a Long-Term Care Facility in the Côte-Nord Region of Quebec.Geriatrics (Basel, Switzerland) · 2026Article
- Assistant Nurses' Experiences of Life Story Documentation: Insights Into the Construction and Application in Dementia Care Practice.Dementia (London, England) · 2026Article
- Translating person-centered care into homecare practice: challenges and innovations in implementing dementia policy in Sweden.Frontiers in dementia · 2026Article
- Care That Matters: Classic Grounded Theory of Identity -Validation in Dementia Care.Global qualitative nursing researchArticle
- Digital life stories: Navigating together - an observation study of healthcare professionals and people living with dementia.Digital healthArticle
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe use of life stories in dementia care has been described as a way of seeing every person as an individual, looking beyond their dementia. Life stories have become synonymous with high-quality care, while in Sweden their mere existence in dementia care settings is taken to indicate quality in national comparisons. Such life stories are often standardised, generated by a family member answering predetermined questions in a template. AIM AND
methodsUsing a constructionist approach, this study will (1) chart what versions of a person's life story the templates produce, and (2) establish the intended purpose of such life stories, as communicated by the templates. This study departs from the assumption that life story templates communicate something about the conceptions of people living with dementia. The thematic analysis used data comprising 30 blank templates, totalling about 1,700 questions.
findingsThe life story templates were found to generate two very different versions of the individual: (1) a person before symptoms of dementia or (2) a patient DISCUSSION: Despite strong pressure on dementia care providers to collect life stories from residents, the life story templates they use are without clear direction, ideology, or purpose. The lack of direction is key given that life stories can be considered actants that shape assumptions about people with dementia and construct realities in dementia care settings. We highlight the need to develop ethical guidelines for life story template design, matched with guidelines for their intended use.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.