ArticlePediatric rheumatology online journal2024
Towards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study.
Article in Pediatric rheumatology online journal, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
6 citing papers in PubMed, 6 citations in OpenAlex.
- Transition of adolescents with JIA to adult rheumatology: what is the most suitable time?Clinical rheumatology · 2026Article
- Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals.Pediatric rheumatology online journal · 2024Article
- Pediatric to adult rheumatology transition: Success rates, influencing factors, and evolving diagnoses and treatments.Archives of rheumatology · 2024Article
- Integrating Chronic Disease Management and Harm Reduction for Youth with Juvenile Idiopathic Arthritis Amid Canada's Overdose Crisis.Children (Basel, Switzerland) · 2024Article
- Measuring Transition Readiness of Patients After Transfer from Pediatric to Adult Care in Rheumatology.Turkish archives of pediatrics · 2024Article
- Challenges and opportunities in transitional care process in Behçet's syndrome.Frontiers in medicine · 2024Article
Corrections and comments
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Authors and funding
46 authors at 20 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundJuvenile idiopathic arthritis (JIA) is a prevalent childhood chronic arthritis, often persisting into adulthood. Effective transitional care becomes crucial as these patients transition from pediatric to adult healthcare systems. Despite the concept of transitional care being recognized, its real-world implementation remains inadequately explored. This study aims to evaluate the thoughts and practices of healthcare providers regarding transitional care for JIA patients.
methodsA cross-sectional survey was conducted among pediatric and adult rheumatologists in Turkey. Based on the American Academy of Pediatrics' six core elements of transitional care, the survey included 86 questions. The respondents' demographic data, attitudes towards transitional care, and practical implementation were assessed.
resultsThe survey included 48 rheumatologists, with 43.7% having a transition clinic. The main barriers to establishing transition programs were the absence of adult rheumatologists, lack of time, and financial constraints. Only 23.8% had a multidisciplinary team for transition care. Participants agreed on the importance of coordination and cooperation between pediatric and adult healthcare services. The timing of the transition process varied, with no consensus on when to initiate or complete it. Participants advocated for validated questionnaires adapted to local conditions to assess transition readiness.
conclusionsThe study sheds light on the challenges and perspectives surrounding transitional care for JIA patients in Turkey. Despite recognized needs and intentions, practical implementation remains limited due to various barriers. Cultural factors and resource constraints affect the transition process. While acknowledging the existing shortcomings, the research serves as a ground for further efforts to improve transitional care and ensure better outcomes for JIA patients transitioning into adulthood.
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Registered trials
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