ArticleInternational journal of qualitative studies on health and well-being2024
An uncertain uphill battle - experiences and consequences of living with lipedema.
Article in International journal of qualitative studies on health and well-being, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed, 12 citations in OpenAlex.
- A qualitative study exploring the experiences of individuals living with lipoedema and the impacts it has on their quality of life.International journal of qualitative studies on health and well-being · 2026Article
- Sexual function and its associations with anxiety, depression, functionality, and quality of life in women with lipedema.Sexual medicine · 2026Article
- More than meets the eye: phenomenological insights into the functioning of people with lipoedema.International journal of qualitative studies on health and well-being · 2025Article
- Experiences of Sexual Health and Intimate Relationships in Women With Lipedema: A Qualitative Study.Journal of advanced nursing · 2025Article
- Examining the characteristic features of lipedema and the usefulness of BMI and WHtR in clinical evaluation.BMC women's health · 2025Article
- Struggles in Accessing Healthcare, the Experiences Made by Women with Lipedema in Sweden - A Qualitative Study.International journal of women's health · 2025Article
- Hedonic hunger and eating behavior after low-carbohydrate versus low-fat diets in females with lipedema and obesity.Frontiers in nutrition · 2025Article
- Evaluation of the Effectiveness of Compression Therapy Combined with Exercises Versus Exercises Only Among Lipedema Patients Using Various Outcome Measures.Life (Basel, Switzerland) · 2024Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo describe and analyse experiences of living with lipedema. Methods: Individual, semi-structured interviews with a purposive sample of 12 women diagnosed with lipedema and analysed by qualitative content analysis utilizing an inductive approach.
resultsThe overarching theme, "An uncertain uphill battle against a divergent body and societal ignorance", covers the experiences of living with lipedema and is based on five categories; "Captivated by a disintegrating body", "Face the impairments of a chronic condition", "Experience social exclusion", "Need emotional support to go on" and "Mull over an insecure future". The women felt entrapped within their bodies and experienced social exclusion due to the chronic symptoms and the progressive body shape alteration caused by their illness. Having experienced deficient information on the illness, varying support from other people, and a deteriorating economic situation, the women face an uncertain future.
conclusionsSymptoms and restrictions caused by lipedema affect women's livelihood and future, as there are no indications for disease improvement. Preventive work aimed at reducing health deterioration should be a priority. More research is needed to raise healthcare awareness regarding difficulties experienced by patients with lipedema.
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