ArticleEuropean child & adolescent psychiatry2025
Reframing stigma in Tourette syndrome: an updated scoping review.
Article in European child & adolescent psychiatry, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 24 citations in OpenAlex.
- Systematic review-understanding the barriers and facilitators experienced by healthcare professionals in providing care for tics: a mixed methods systematic review of clinical knowledge, attitudes, and practices.BMC medical education · 2024Pooled it
- Therapist-guided, mobile app-assisted behavioural treatment for children and adolescents with chronic tic disorders: a pilot randomised controlled trial.European child & adolescent psychiatry · 2026Trial
- Stereotypes about tourette syndrome and associations with social media use: results from a large-scale german population survey.Scientific reports · 2026Article
- The Impact of Provider Goals, Perceptions, and Beliefs on the Delivery of Comprehensive Behavioral Intervention for Tics.Child psychiatry and human development · 2026Article
- Nationwide survey of psychopathology and bullying in tic disorders with and without ADHD.Child and adolescent psychiatry and mental health · 2026Article
- Stigma and risk of self-injury and suicidality in adults with Tourette syndrome: findings from a cross-sectional impact survey.BMJ open · 2026Article
- Beyond the Tics: Experiences of Stigma and Psychosocial Impact in Tourette Syndrome.Child psychiatry and human development · 2026Article
- Attitudes towards Tourette syndrome and schizophrenia amongst psychology students.Frontiers in psychology · 2026Article
- Tic severity and quality of life in children with tic disorders: the chain mediating effects of stigma and anxiety.Frontiers in psychiatry · 2026Article
- Exploring Empowerment in Online Support Communities for People Living With Tic Disorders and Tourette Syndrome: Qualitative Survey Study of User Experiences.JMIR formative research · 2025Article
- Effects of a Board Game on Tic Management and Psychosocial Functioning in Adolescents With Tourette Syndrome: Randomized Controlled Trial.JMIR serious games · 2025Article
- Article
- Tic-Talk: Voices on Tourette's Labelling.Movement disorders clinical practice · 2025Article
- Tourette syndrome research highlights from 2023.F1000Research · 2024Review
- Study protocol for measuring stigmatization in persistent tic disorders: development and validation of the Tourette discrimination-stigmatization scale.Frontiers in psychology · 2024Article
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Persistent tic disorders (PTD) such as Tourette's syndrome (TS) are common childhood-onset neurodevelopmental disorders. Stigmatization of individuals with these disorders remains an ongoing problem. The purpose of this scoping review is to serve as an updated review of the research regarding stigmatization in youth with PTD since the publication of the original systematic review about this topic in 2016. The electronic databases Embase, Web of Science, PubMed, PsycINFO, and CINAHL were searched. Of the 4751 initial articles screened after removing duplications, 47 studies met the inclusion criteria. The studies were examined under the social-ecological stigmatization model, which helps categorize stigmatization into individual, interpersonal, community, and structural levels and serves as a broader definition of stigmatization than the previous systematic review. On the individual level, youth with PTD had lower self-esteem than peers, often leading to fear of future stigmatization, avoidant behaviors, and self-stigmatization. They also experienced higher rates of bullying and other forms of abuse than peers at the interpersonal level. At the community level, youth with PTD faced discriminatory environments in school and work and limited availability of community services and healthcare access. At the structural level, knowledge about PTD was limited in the general population, often about the limited portrayals of PTD in the media. We hope that the broader scope of this review serves to help inform future efforts to decrease the stigmatization faced by this group.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.