Evidence map›Paper›PMID 38155282›Full record

ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2024

"Life Without Symptoms" or "Being Able to Enjoy Life": What does it Mean to be "Well" After Cancer?

Gemma Skaczkowski, Sheina Orbell, Carlene Wilson

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In one paragraph

Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Gemma SkaczkowskiSchool of Psychology & Public Health, La Trobe University, Bundoora, Australia. g.skaczkowski@latrobe.edu.au.ORCID 0000-0003-0715-3563
Sheina OrbellDepartment of Psychology, University of Essex, Colchester, UK.ORCID 0000-0002-8665-3541
Carlene WilsonSchool of Psychology & Public Health, La Trobe University, Bundoora, Australia.ORCID 0000-0002-1883-4690

Funding

Penny Appeal Australia Penny Appeal Australia
6 · The paper itself

Abstract

objectiveTo achieve wellness in cancer survivorship, researchers and clinicians need a better understanding of what it means to live "well", from the perspective of cancer survivors themselves.

methodsAustralian and UK cancer survivors (N = 376) diagnosed in the previous five years, were asked "What does it mean to be well?", with an open-ended text response. Responses were coded using content analysis. Demographics, time since diagnosis, coping style and symptom level were also assessed.

resultsDescriptions of what it meant to be "well" were coded as absence-focused (living without negative impacts of illness, 32.7%) or presence-focused (living with health, function, or wellbeing, 37.8%). A further 29.5% of responses contained both elements. Lower symptom level and higher use of a fatalism coping style were associated with presence-focused definitions of being well.

conclusionsMore meaningful conversations with cancer survivors about their goals for care would be facilitated by a better understanding of what it means to them to be "well". As symptoms change over the course of survivorship, it may be necessary to re-examine each survivor's goals of care.

Indexed as

Cancer SurvivorsNeoplasmsAustraliaHumansQuality of LifeSurvivorshipCancerPatient-centred careSurvivorshipWellness

Identifiers

PMID38155282

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.