ArticleBMJ open2023
What are best practices for involving family caregivers in interventions aimed at responsive behaviour stemming from unmet needs of people with dementia in nursing homes: a scoping review.
Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 10 citations in OpenAlex.
- The Impact of a Stepwise Method Involving Family Caregivers in Managing Challenging Behavior and Pain in Nursing Home Residents With Dementia.International journal of geriatric psychiatry · 2026Article
- Using saliency and tacit knowledge for person-centred care: a two-phased qualitative study on patient and family involvement in residential care.BMC geriatrics · 2026Article
- How does a video feedback intervention work for people with dementia and distress behaviour living in a nursing home, for whom and under which circumstances? A realist interview study.International journal of nursing studies advances · 2026Article
- Quality of Dying Among Institutionalised Nursing Home Residents From the Caregivers' Perspective: A Mixed-Methods Study.Journal of advanced nursing · 2026Article
- Understanding the family caregivers' needs in late-stage dementia: a qualitative perspective to inform policy action.BMC geriatrics · 2026Article
- Family caregivers' experiences in dementia villages: a model for sustainable and meaningful care.Frontiers in dementia · 2026Article
- Caregiver-involved reminiscence for persons with dementia: a scoping review protocol.Systematic reviews · 2025Article
- Nursing Interventions in Palliative Care for Advanced Dementia: A Systematic Review of Symptom, Relief, Comfort, and Caregiver Support.Journal of multidisciplinary healthcare · 2025Review
- Family Involvement Training for Staff and Family Caregivers: Case Report on Program Design and Mixed Methods Evaluation.Healthcare (Basel, Switzerland) · 2024Article
- Modifying a multidisciplinary method to address challenging behavior in nursing home residents with dementia to involve family caregivers.Frontiers in dementia · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThis study aimed to determine best practices for involving family caregivers in interventions aimed at preventing and reducing responsive behaviour stemming from unmet needs, including pain.
designScoping review, reported according to the Preferred Reporting Items for Systematic Reviews, Meta-Analyses extension for Scoping Reviews reporting guideline. DATA SOURCES: PubMed, Embase, Emcare, Web of Science, COCHRANE Library, PsycINFO, Academic Search Premier and Cinahl searched up to 23 July 2023. ELIGIBILITY CRITERIA: Studies reporting on family involvement in interventions for nursing home residents with dementia were included. DATA EXTRACTION AND SYNTHESIS: Two researchers independently extracted the data, followed by a content analysis.
resultsOf the 1486 records screened, 20 studies were included. Family caregivers were involved in interventions aimed at planning care, life review (eg, documentation of life experiences of their relative), and selecting activities for their relative. Family caregivers preferred an active role in developing optimal care for their relative. Drivers of success and barriers to family involvement centred around three themes: (1) communication between all involved; (2) prerequisites (organisational and other conditions) and (3) personal circumstances (family's coping and skills).
conclusionBest practices for involving family caregivers in interventions aimed at addressing responsive behaviour in residents with dementia concerned those interventions in which family caregivers were given an important role in managing responsive behaviour. This means that, in order to achieve an active role of family caregivers in the whole care process, their needs must be taken into account. TRIAL REGISTRATION NUMBER: The protocol of the review was regisered at OSF; https://osf.io/twcfq.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.