Evidence map›Paper›PMID 38149417›Full record

ArticleBMJ open2023

Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography.

Linda Birt, Juniper West, Fiona Poland, Geoff Wong, Melanie Handley, Rachael Litherland, Corinna Hackmann, Esme Moniz-Cook, Emma Wolverson, Bonnie Teague and 4 more

Abstract read
In one paragraph

Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Linda BirtSchool of Health Sciences, University of East Anglia, Norwich, UK linda.birt@uea.ac.uk.ORCID 0000-0002-4527-4414
Juniper WestResearch and Development, Norfolk and Suffolk NHS Foundation Trust, Norwich, UK.ORCID 0000-0003-0802-7243
Fiona PolandSchool of Health Sciences, University of East Anglia, Norwich, UK.
Geoff WongNuffield Department of Primary Care Health Sciences, Oxford University, Oxford, UK.
Melanie HandleyCRIPACC, University of Hertfordshire, Hatfield, UK.
Rachael LitherlandInnovations in Dementia, Exeter, UK.
Corinna HackmannResearch and Development, Norfolk and Suffolk NHS Foundation Trust, Norwich, UK.ORCID 0000-0002-4940-6998
Esme Moniz-CookFaculty of Health Sciences, Department of Psychological Health and Well Being, University of Hull, Hull, UK.ORCID 0000-0002-7232-4632
Emma WolversonFaculty of Health Sciences, University of Hull, Hull, UK.
Bonnie TeagueResearch, Norfolk and Suffolk NHS Foundation Trust, Norwich, UK.
Ruth MillsOlder People's Services, Norfolk and Suffolk NHS Foundation Trust, Norwich, UK.
Kathryn SamsOlder People's Services, Norfolk and Suffolk NHS Foundation Trust, Norwich, UK.
Claire DuddyNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.ORCID 0000-0002-7083-6589
Chris FoxDepartment of Psychological Sciences, Norwich Medical School, Norwich, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionSupport following a dementia diagnosis in the UK is variable. Attending a Recovery College course with and for people with dementia, their supporters and healthcare professionals (staff), may enable people to explore and enact ways to live well with dementia. Recovery Colleges are established within mental health services worldwide, offering peer-supported short courses coproduced in partnership between staff and people with lived experience of mental illness. The concept of recovery is challenging in dementia narratives, with little evidence of how the Recovery College model could work as a method of postdiagnostic dementia support. METHODS AND ANALYSIS: Using a realist evaluation approach, this research will examine and define what works, for whom, in what circumstances and why, in Recovery College dementia courses. The ethnographic study will recruit five case studies from National Health Service Mental Health Trusts across England. Sampling will seek diversity in new or long-standing courses, delivery methods and demographics of population served. Participant observations will examine course coproduction. Interviews will be undertaken with people with dementia, family and friend supporters and staff involved in coproducing and commissioning the courses, as well as people attending. Documentary materials will be reviewed. Analysis will use a realist logic of analysis to develop a programme theory containing causal explanations for outcomes, in the form of context-mechanism-outcome-configurations, at play in each case. ETHICS AND DISSEMINATION: The study received approval from Coventry & Warwickshire Research Ethics Committee (22/WM/0215). Ethical concerns include not privileging any voice, consent for embedded observational fieldwork with people who may experience fluctuating mental capacity and balancing researcher 'embedded participant' roles in publicly accessible learning events. Drawing on the realist programme theory, two stakeholder groups, one people living with dementia and one staff will work with researchers to coproduce resources to support coproducing Recovery College dementia courses aligned with postdiagnostic services.

Indexed as

DementiaMental Health ServicesAnthropology, CulturalEnglandHumansState MedicineDementiaOld age psychiatryPatient ParticipationQUALITATIVE RESEARCH

Identifiers

PMID38149417
PMCPMC10711820

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.