Evidence map›Paper›PMID 38143399›Full record

ArticleJournal of pediatric rehabilitation medicine2023

Spina Bifida Global Learning Collaborative: Educating the next generation of clinicians, researchers, and advocates.

Nienke P Dosa, Yakob S Ahmed, Ann Alriksson-Schmidt, Heidi Castillo, Silvana Contepomi, Mary M Locastro, Jan Koning, George Koutsouras, Elly Kutwa, Anjali Mahorta and 9 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pediatric rehabilitation medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Nienke P DosaSpina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA.
Yakob S AhmedReachAnother Foundation, Bend, OR, USA; Addis Ababa, Ethiopia; and Delft, The Netherlands.
Ann Alriksson-SchmidtDepartment of Clinical Sciences Lund, Orthopedics, Lund University, Lund, Sweden.
Heidi CastilloDevelopmental-Behavioral Pediatrics, Texas Children's Hospital/Baylor College of Medicine, Houston, TX; and Developmental Medicine, Department of Pediatrics, Children's Nebraska, Omaha, NE, USA.
Silvana ContepomiArgentine Assistive Technology Association, Buenos Aires, Argentina.
Mary M LocastroSpina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA.
Jan KoningReachAnother Foundation, Bend, OR, USA; Addis Ababa, Ethiopia; and Delft, The Netherlands.
George KoutsourasSpina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA.
Elly KutwaMaseno University School of Medicine and Surgery, Kisumu, Kenya.
Anjali MahortaSpina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA.
Shade MacFarlandSpina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA.
Ann-Marie ÖhrvallDepartment of Neurobiology, Care Sciences and Society (NVS), Division of Occupational Therapy, Karolinska Institute, Stockholm, Sweden.
Patricia O'NeillReachAnother Foundation, Bend, OR, USA; Addis Ababa, Ethiopia; and Delft, The Netherlands.
Anneloes OverveldeReachAnother Foundation, Bend, OR, USA; Addis Ababa, Ethiopia; and Delft, The Netherlands.
Marie Peny-DahlstrandDepartment of Health and Rehabilitation, Institute of Neuroscience and Physiology, Occupational Therapy Unit, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Andrea ShawSpina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA.
Jessica StockmanDepartment of Clinical Sciences Lund, Orthopedics, Lund University, Lund, Sweden.
Zulma Tovar-SpinozaSpina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA.
Jonathan CastilloDevelopmental-Behavioral Pediatrics, Texas Children's Hospital/Baylor College of Medicine, Houston, TX; and Developmental Medicine, Department of Pediatrics, Children's Nebraska, Omaha, NE, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThis project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees.

methodsUsing a descriptive study design, a convenience sample of SB curricula were identified in 2022-23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB education in a global health context. Participants included (1) leadership from the ReachAnother Foundation, (2) invited panelists from the Spina Bifida World Congress Global Health Symposium, and (3) global health students and preceptors. Education initiatives in Ethiopia, Sweden, Argentina, Ecuador, and the United States were evaluated vis-à-vis format and content.

resultsAll of the education initiatives referenced the framework of the World Health Organization International Classification of Functioning, Disability and Health. Formats varied and included both virtual and interactive workshops, print materials, videos, and guides for small group discussion. Content addressed four domains: Folate Prevention, Neurosurgical Training, After Care, and Data Collection. A multidisciplinary approach, partnerships with families, and workforce pipeline training were identified as guiding themes for educating the next generation of SB researchers and clinicians in global health settings.

conclusionThe Spina Bifida Global Learning Collaborative is a transnational group of advocates, clinicians, and investigators whose mission is the advancement of SB-related global health education. Lessons learned from the collaborative are being leveraged to develop a global health curriculum for learners, which may improve services for individuals with SB around the globe.

Indexed as

Spinal DysraphismArgentinaCurriculumGlobal HealthHumansSwedenglobal healthinterprofessional educationSpina bifida

Identifiers

PMID38143399
PMCPMC10789363

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.