Evidence map›Paper›PMID 38133582›Full record

ArticleInternational journal of methods in psychiatric research2023

Development, psychometric evaluation, and factor analysis of an instrument measuring quality of life in autistic preschoolers.

Jérôme Lichtlé, Emmanuel Devouche, Isaora Zefania Dialahy, Aude de Gaulmyn, Anouck Amestoy, Romain Coutelle, Pascale Isnard, Jean-Louis Monestès, Laurent Mottron, Emilie Cappe

Open access · goldAbstract read
In one paragraph

Article in International journal of methods in psychiatric research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
1.3field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 8 institutions in 2 countries.

Jérôme LichtléUniversité Paris Cité, Laboratoire de Psychopathologie et Processus de Santé, Boulogne-Billancourt, France.ORCID https://orcid.org/0000-0001-5147-559X
Emmanuel DevoucheUniversité Paris Cité, Laboratoire de Psychopathologie et Processus de Santé, Boulogne-Billancourt, France.ORCID https://orcid.org/0000-0003-3987-1842
Isaora Zefania DialahyCentre Intégré Universitaire de Santé et des Services Sociaux du Nord de l'île de Montréal, Montréal, Québec, Canada.
Aude de GaulmynCentre de Recherche et Diagnostic pour l'Autisme et Troubles Apparentés (CREDAT, Hôpital Sainte-Anne GHU Paris Psychiatrie & Neurosciences), Paris, France.
Anouck AmestoyINCIA, UMR 5287, CNRS Bordeaux Neurocampus. CHCP, Bordeaux, France.
Romain CoutelleService de Psychiatrie de l'enfant et de l'adolescent, Hôpitaux Universitaires de Strasbourg, Strasbourg, France.
Pascale IsnardService de Pédopsychiatrie, Hôpital Bichat Claude Bernard, APHP. Nord Université Paris Cité, Paris, France.
Jean-Louis MonestèsLIP/PC2S Lab, Univ. Grenoble Alpes, Grenoble, France.
Laurent MottronDépartement de Psychiatrie et d'Addictologie, Hôpital Rivière Des Prairies & Centre de Recherche du CIUSSS-NIM, Université de Montréal, Montréal, Québec, Canada.ORCID https://orcid.org/0000-0001-5668-5422
Emilie CappeUniversité Paris Cité, Laboratoire de Psychopathologie et Processus de Santé, Boulogne-Billancourt, France.ORCID https://orcid.org/0000-0002-4792-8653
Centre Intégré Universitaire de Santé et de Services Sociaux du Centre-Sud-de-l'Île-de-Montréal · CAUniversité Paris Cité · FRCentre National de la Recherche Scientifique · FRHôpital Sainte-Périne · FRInserm · FRInstitut Universitaire de France · FRUniversité Claude Bernard Lyon 1 · FRUniversité Grenoble Alpes · FR

Funding

Faculty of Humanities and Social Sciences of Université Paris Cité (AAP1 2022 "Animation scientifique")
6 · The paper itself

Abstract

introductionEarly interventions for autistic children should target their quality of life (QoL) but require adapted measures. The association of a child's temperament and parental characteristics with the QoL of autistic children remains unknown.

methodsWe constructed an autism module based on a thematic analysis, a Delphi survey with experts, and a pre-test with parents to be completed alongside the proxy version of the PedsQL 4.0. We explored compliance, responsiveness, internal consistency, convergent validity, and factor structure with 157 parents of autistic preschool children. We examined the association between child and parental characteristics with the QoL of autistic children using correlation analysis, principal component analysis, hierarchical ascending classification, and linear regression. Sociodemographic information was collected via multiple choice questions, autism severity via Autism Diagnostic Observation Schedule (ADOS) scores, and parental acceptance and child's temperament via the Acceptance and Action Questionnaire and the Emotionality, Activity, and Sociability.

resultsAn autism module comprised of 27 items emerged. Psychometric evaluation resulted in a 24-item autism module with good internal consistency and significant convergent validity. ADOS total score was not significantly related to QoL, contrary to children's sleep issues, children's emotionality, and parental acceptance.

conclusionsThe autism module is a reliable QoL proxy measure for autistic preschool children. Results suggest parental interventions targeting children's QoL.

Indexed as

acceptanceautism spectrum disorderpreschoolerspsychometric validationquality of lifetemperament

Identifiers

PMID38133582
PMCPMC10804264
OpenAlexW4390103391

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.