ArticleNursing ethics2024
Blurred lines: Ethical challenges related to autonomy in home-based care.
Article in Nursing ethics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Moral conflicts in home-based care: a meta-synthesis of qualitative research.BMC medical ethics · 2025Pooled it
- Mental Health Support Workers Perspectives on Barriers to and Facilitators of the Effective Delivery of their Roles: A Systematic Review and Meta-aggregation.Community mental health journal · 2025Pooled it
- The process of nurses' confrontation with ethical conflicts in home care: a grounded theory study.BMC nursing · 2025Article
- Perspectives of user groups in the co-creation of a targeted dental care service intervention for older adults receiving home healthcare: an explorative study.BMC health services research · 2025Article
- Digital ethical reflection in home nursing care: Nurse leaders' and nurses' experiences.Nursing ethics · 2025Article
- Complicated Interactions in Home Care: An Ethnographic Study.Global qualitative nursing researchArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundHome-based care workers mainly work alone in the patient's home. They encounter a diverse patient population with complex health issues. This inevitably leads to several ethical challenges.
aimThe aim is to gain insight into ethical challenges related to patient autonomy in home-based care and how home-based care staff handle such challenges. RESEARCH
designThe study is based on a 9-month fieldwork, including participant observation and interviews in home-based care. Data were analysed with a thematic analysis approach. PARTICIPANTS AND RESEARCH CONTEXT: The study took place within home-based care in three municipalities in Eastern Norway, with six staff members as key informants. ETHICAL CONSIDERATIONS: The Norwegian Agency for Shared Services in Education and Research evaluated the study. All participants were competent to consent and signed an informed consent form.
findingsA main challenge was that staff found it difficult to respect the patient's autonomy while at the same time practicing appropriate care. We found two main themes: Autonomy and risk in tension; and strategies to balance autonomy and risk. These were explicated in four sub-themes: Refusing and resisting care; when choosing to live at home becomes risky; sweet-talking and coaxing; and building trust over time. Staff's threshold for considering the use of coercion appeared to be high.
conclusionsArguably, home-based care staff need improved knowledge of coercion and the legislation regulating it. There is also a need for arenas for ethics reflection and building of competence in balancing ethical values in recurrent ethical problems.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.