Evidence map›Paper›PMID 38117420›Full record

ArticleJournal of autism and developmental disorders2025

Siblings FORWARD: Development of a New Program to Engage Siblings of Autistic Adults in Future Planning.

Kristin A Long, Jade LaRochelle, Monica Gordillo, Emily M Pariseau, Melissa G DeCelle, Gael Orsmond

Abstract read
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In one paragraph

Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Review
  3. Review
  4. Close Relationships Despite the Challenges: Sibling Relationships and Autism.Journal of autism and developmental disorders · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Kristin A LongDepartment of Psychological & Brain Sciences, Program in Clinical Psychology, Boston University, 900 Commonwealth Ave., Second Floor, Boston, MA, USA. kalong@bu.edu.ORCID http://orcid.org/0000-0001-8486-2545
Jade LaRochelleDepartment of Occupational Therapy, Boston University, Boston, MA, USA.
Monica GordilloDepartment of Psychological & Brain Sciences, Program in Clinical Psychology, Boston University, 900 Commonwealth Ave., Second Floor, Boston, MA, USA.
Emily M PariseauDepartment of Psychological & Brain Sciences, Program in Clinical Psychology, Boston University, 900 Commonwealth Ave., Second Floor, Boston, MA, USA.
Melissa G DeCelleDepartment of Occupational Therapy, Boston University, Boston, MA, USA.
Gael OrsmondDepartment of Occupational Therapy, Boston University, Boston, MA, USA.

Funding

Engaging Siblings of Adults with Autism in Future PlanningR34MH111489 · NIMH · BOSTON UNIVERSITY (CHARLES RIVER CAMPUS) · PI LONG, KRISTIN ANN, ORSMOND, GAEL I. · 2017 to 2019
$877k
Foundation for the National Institutes of Health R34 MH111489-R1
6 · The paper itself

Abstract

The adult service system does not adequately meet the needs of autistic adults, prompting families to continue their supportive roles. Siblings frequently assume these roles when parents are no longer able to do so, often without preparation or planning. We received feedback on the proposed Siblings FORWARD (Focusing on Relationships, Well-being, and Responsibility aheaD) program concept, which would involve 6-7 individualized sessions over ~ 3 months and would facilitate siblings' proactive future planning involvement with their autistic family member. Siblings FORWARD would bolster siblings' skills, knowledge, and self-efficacy to engage in future planning with their family members. We report on perceived need for a sibling program and feedback on the proposed program goals, content, and design. Adult siblings (n = 13), autistic adults (n = 6), and service providers (n = 17) participated in individual interviews or focus groups. Data were systematically coded and analyzed using directed content analysis. Siblings, autistic adults, and service providers expressed high enthusiasm for the Siblings FORWARD concept. Participants indicated that the combination of skill-building and education would promote continued, collaborative future planning that persists after the formal program ends. They had positive impressions of the program concept, goals, content, and design, including the telehealth delivery model. Siblings and autistic adults reported wanting to participate in Siblings FORWARD. This uniform, strong enthusiasm for the Siblings FORWARD concept warrants moving forward to examine preliminary acceptability and feasibility. Ultimately, greater sibling involvement in family future planning may improve autistic adults' functioning through improved continuity of care and support across adulthood.

Indexed as

Autistic DisorderProgram DevelopmentSibling RelationsSiblingsAdultFemaleFocus GroupsHumansMaleMiddle AgedSelf EfficacyYoung AdultAdultAutismFamilyFuturePlanningSibling

Identifiers

PMID38117420

What OpenQuestion holds

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Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.