ArticleAutism in adulthood2023
"I've Spent My Whole Life Striving to Be Normal": Internalized Stigma and Perceived Impact of Diagnosis in Autistic Adults.
Article in Autism in adulthood, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
18 citing papers in PubMed, 30 citations in OpenAlex.
- Evaluating the Autism Spectrum Rating Scale Parent and Teacher Reports (6 to 18 years) to Predict an Autism Diagnosis in a Clinical Sample.Child psychiatry and human development · 2026Article
- Supporting a 'good life' for autistic children: Autistic adults' and parents' perspectives.Autism : the international journal of research and practice · 2026Article
- Autistic Adults and Loved Ones' Experiences of a Later Life Diagnosis.Journal of autism and developmental disorders · 2026Article
- Quality of life outcomes associated with stigma in autistic adults and their families: a systematic review.Frontiers in psychiatry · 2026Review
- Gender differences in autism prevalence: origins of bias and its current scientific relevance.Frontiers in psychiatry · 2026Article
- Quality-of-life assessment in autistic adults with lower support needs: gaps and emerging challenges.Frontiers in psychiatry · 2026Review
- From diagnosis to dialogue: a call for support of older adults with a late autism diagnosis.The Gerontologist · 2025Article
- Diagnostic Experiences and Barriers to Diagnosis Among Autistic Adults in the United States: Associations with Diagnostic Timing and Gender.Journal of autism and developmental disorders · 2025Article
- Communicating Diversity: (Cognitive) Ableism in Information-Seeking Research.Autism in adulthood · 2025Article
- 'It's Really Who They Are and What They Want': Staff Perspectives on Supporting Autonomy for Autistic Adults With Intellectual Disabilities.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Longitudinal Relationships Between Depressive Attributional Style and Internalizing Symptoms in an Autism-Enriched Sample of Incoming College Students.Autism in adulthood · 2025Article
- An integrative approach between neurodiversity perspectives and quality of life models for autistic people across the spectrum of support needs.Frontiers in psychiatry · 2025Review
- Addressing Stigma-Related Health Disparities for Autistic Individuals Through Cultural Competemility: Insights from Research and Lived Experience.Current psychiatry reports · 2024Review
- Self- and Informant Report in a First-Time Diagnosis of Autism Spectrum Disorder in Adulthood: the Role of Females.Advances in neurodevelopmental disorders · 2024Article
- Camouflaging, internalized stigma, and mental health in the general population.The International journal of social psychiatry · 2024Article
- Re: "'I've Spent My Whole Life Striving to Be Normal': Internalized Stigma and Perceived Impact of Diagnosis in Autistic Adults" by Huang et al.: Late Diagnosis Illuminated-Perspectives on Autism Resilience and Complexity.Autism in adulthood · 2024Article
- Editorial: Break the stigma: autism. The future of research on autism stigma - towards multilevel, contextual & global understanding.Frontiers in psychiatry · 2024Article
- Treatment-seeking threshold and accessibility of psychiatric outpatient services in Switzerland: the relationship with stigma and self-esteem.Frontiers in psychiatry · 2024Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Receiving an autism diagnosis in adulthood often leads to improved self-understanding and deeper self-reflection, which can have major impacts on people's well-being and sense of identity. However, autism diagnosis also exposes individuals to societal stigma, which may become internalized over time. This study aimed to explore relationships between psychological and service-related impacts of diagnosis and internalized stigma using mixed methods. Methods: One hundred forty-three autistic adults completed an online survey involving impact of diagnosis domains of Self-Understanding, Well-being, Clinician Support, and Service Access, internalized stigma, and open-ended questions on beliefs about autism diagnosis. Results: On average, participants reported mild levels of internalized stigma and positive impact of diagnosis in all domains except Service Access. Older age at diagnosis was positively associated with Clinician Support only. The path analysis model showed positive relationships between impact of diagnosis domains, with Self-Understanding having a positive effect on Well-being via lowered internalized stigma. We developed four themes of Conclusions: Self-understanding protects against the development of internalized autism stigma. Diagnosticians and service providers play an important role in improving self-understanding and well-being in autistic adults. More research is needed to understand the role of age at diagnosis and mechanisms behind positive identity development after autism diagnosis.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.