Evidence map›Paper›PMID 38114745›Full record

ArticleJournal of community genetics2024

Training of community health agents - a strategy for earlier recognition of mucopolysaccharidoses.

Diane Bressan Pedrini, Larissa Pozzebon da Silva, Taiane Alves Vieira, Roberto Giugliani

Abstract read
In one paragraph

Article in Journal of community genetics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Diane Bressan PedriniMedical Genetics Service Department, Hospital de Clínicas de Porto Alegre, Porto Alegre, Brazil.ORCID http://orcid.org/0000-0002-3068-1017
Larissa Pozzebon da SilvaBrazilian Research Group On Rare Diseases (DR Brasil), Hospital de Clínicas de Porto Alegre, Porto Alegre, Brazil.ORCID http://orcid.org/0000-0002-2404-6893
Taiane Alves VieiraMedical Genetics Service Department, Hospital de Clínicas de Porto Alegre, Porto Alegre, Brazil. tavieira@hcpa.edu.br.ORCID http://orcid.org/0000-0001-9958-009X
Roberto GiuglianiMedical Genetics Service Department, Hospital de Clínicas de Porto Alegre, Porto Alegre, Brazil.ORCID http://orcid.org/0000-0001-9655-3686

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Primary Health Care (PHC) is the gateway for patients in the Brazilian unified health system (Sistema Único de Saúde-SUS), playing an extremely important role in the identification of potential patients with genetic diseases, and referral to specialized and tertiary health services. The PHC is composed of a multidisciplinary team, including the Community Health Agent, who is in direct contact with the community. To implement an educational program aimed at community health agents working in several municipalities in the state of Rio Grande do Sul (RS), Brazil. The training was focused on genetic diseases in general, with a special focus on identifying patients with Mucopolysaccharidosis (MPS). Tests were applied before and after the educational intervention, in order to assess the participants' knowledge on the topic at these two moments. The study covered a total of ten training sessions carried out in eight municipalities in the RS state, training 374 community health agents. The number of correct answers in the pre-test (n = 339) was 8,4 (SD 1.2), while in the post-test (n = 361) it was 9,2 (SD 0.8). Statistical analysis showed that the educational intervention effectively provided information about genetic diseases to the participants. Considering that community health agents are of fundamental importance in the identification and prevention of diseases and in the better navigation of the patients on the SUS, these professionals play a key role in the field of rare genetic diseases, and continuous training strategies should be taken.

Indexed as

Community geneticsCommunity health agentContinuing educationMucopolysaccharidosesPrimary Health CareSistema Único de Saúde (SUS)

Identifiers

PMID38114745
PMCPMC11031509

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.