Evidence map›Paper›PMID 38105445›Full record

SynthesisDementia (London, England)2024

Setting individualised goals for people living with dementia and their family carers: A systematic review of goal-setting outcome measures and their psychometric properties.

Jessica Budgett, Andrew Sommerlad, Nuriye Kupeli, Sedigheh Zabihi, Anna Olsen, Claudia Cooper

Open access · hybridAbstract readSystematic Review
In one paragraph

Synthesis in Dementia (London, England), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
5.7field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 10 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Jessica BudgettDivision of Psychiatry, University College London, and Centre for Psychiatry and Mental Health, Wolfsen Institute of Population Health, Queen Mary University of London UK.ORCID 0000-0003-1095-5065
Andrew SommerladDivision of Psychiatry, University College London and Camden and Islington NHS Foundation Trust, UK.ORCID 0000-0002-8895-7055
Nuriye KupeliDivision of Psychiatry, Marie Curie Palliative Care Research Department, University College London, UK.ORCID 0000-0001-6511-412X
Sedigheh ZabihiDivision of Psychiatry, University College London, UK.ORCID 0000-0002-2770-0862
Anna OlsenDivision of Psychiatry, University College London, UK.
Claudia CooperCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, UK.ORCID 0000-0002-2777-7616
Queen Mary University of London · GBUniversity College London · GB

Funding

Marie Curie MCCC-FCO-11-U
6 · The paper itself

Abstract

backgroundIndividualised goal-setting outcome measures can be a useful way of reflecting people living with dementia and family carers' differing priorities regarding quality-of-life domains in the highly heterogeneous symptomatology of the disease. Evaluating goal-setting measures is challenging, and there is limited evidence for their psychometric properties.

aim(1) To describe what goal-setting outcomes have been used in this population; (2) To evaluate their validity, reliability, and feasibility in RCTs.

methodWe systematically reviewed studies that utilised goal-setting outcome measures for people living dementia or their family carers. We adapted a risk of bias and quality rating system based on the COSMIN guidelines to evaluate the measurement properties of outcomes when used within RCTs.

resultsThirty studies meeting inclusion criteria used four different goal-setting outcome measures: Goal Attainment Scaling (GAS), Bangor Goal Setting Interview (BGSI), Canadian Occupational Performance Measure (COPM) and Individually Prioritized Problems Assessment (IPPA); other papers have reported study-specific goal-setting attainment systems. Only GAS has been used as an outcome over periods greater than 9 months (up to a year). Within RCTs there was moderate quality evidence for sufficient content validity and construct validity for GAS, COPM and the BGSI. Reliability was only assessed in one RCT (using BGSI); in which two raters reviewed interview transcripts to rate goals with excellent inter-rater reliability. Feasibility was reported as good across the measures with a low level of missing data.

conclusionWe found moderate quality evidence for good content and construct validity and feasibility of GAS, BGSI and COPM. While more evidence of reliability of these measures is needed, we recommend that future trials consider using individualised goal setting measures, to report the effect of interventions on outcomes that are most meaningful to people living with dementia and their families.

Indexed as

CaregiversDementiaGoalsHumansOutcome Assessment, Health CarePsychometricsReproducibility of Resultsdementiafamily carersgoal attainmentgoal attainment scalinggoal settingoutcome measurespsychometric propertiessystematic review

Identifiers

PMID38105445
PMCPMC10807246
OpenAlexW4389900031

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.