Evidence map›Paper›PMID 38103143›Full record

ArticleEndocrine2024

The impact of electronic versus paper-based data capture on data collection logistics and on missing scores in thyroid cancer patients.

Susanne Singer, Gerasimos Sykiotis, Akram Al-Ibraheem, Monica Pinto, Ioannis Iakovou, Arild Andre Østhus, Eva Hammerlid, Laura Deborah Locati, Eva Maria Gamper, Juan Ignacio Arraras and 14 more

Abstract readMulticenter Study
PubMed Full text at PMC Publisher
In one paragraph

Article in Endocrine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

24 authors.

Susanne SingerInstitute of Medical Biostatistics, Epidemiology and Informatics (IMBEI), University Medical Centre Mainz, Mainz, Germany. susanne.singer@uni-mainz.de.ORCID 0000-0001-5784-7964
Gerasimos SykiotisService of Endocrinology, Diabetology and Metabolism, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.ORCID 0000-0002-9565-4941
Akram Al-IbraheemDepartment of Nuclear Medicine, King Hussein Cancer Center, Amman, Jordan.ORCID 0000-0002-0978-4716
Monica PintoRehabilitation Medicine Unit, Strategic Health Services Department, Istituto Nazionale Tumori - IRCCS - Fondazione G. Pascale, Naples, Italy.ORCID 0000-0002-0823-4907
Ioannis IakovouDepartment of Nuclear Medicine, Aristotle University, Thessaloniki, Greece.
Arild Andre ØsthusENT and Head and Neck Department, University Medical Centre Oslo, Oslo, Norway.ORCID 0000-0002-0583-4106
Eva HammerlidInstitute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.ORCID 0000-0002-1813-108X
Laura Deborah LocatiHead and Neck Medical Oncology Unit, Fondazione IRCCS istituto Nazionale dei Tumori, Milan, Italy.ORCID 0000-0003-3315-2580
Eva Maria GamperDepartment of Nuclear Medicine and Department of Psychiatry, Psychotherapy and Psychosomatic Medicine, University Hospital Psychiatry II, Medical University of Innsbruck, Innsbruck, Austria.ORCID 0000-0002-1700-4054
Juan Ignacio ArrarasOncology Departments, Complejo Hospitalario de Navarra, Pamplona, Spain.ORCID 0000-0002-4415-2570
Susan JordanSchool of Public Health, The University of Queensland, Brisbane, QLD, Australia.ORCID 0000-0002-4566-1414
Matthias BuettnerInstitute of Medical Biostatistics, Epidemiology and Informatics (IMBEI), University Medical Centre Mainz, Mainz, Germany.ORCID 0000-0002-7000-8257
Deborah EngesserInstitute of Medical Biostatistics, Epidemiology and Informatics (IMBEI), University Medical Centre Mainz, Mainz, Germany.ORCID 0000-0001-8377-1553
Katherine TaylorInstitute of Medical Biostatistics, Epidemiology and Informatics (IMBEI), University Medical Centre Mainz, Mainz, Germany.ORCID 0000-0003-0768-5789
Rita CanotilhoInstituto Português do Oncologia do Porto Francisco Gentil, Porto, Portugal.ORCID 0000-0003-3914-0679
Georgios IoannidisOncology Department, Nicosia General Hospital, Nicosia, Cyprus.ORCID 0000-0003-2535-7279
Olga HussonDivision of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands.ORCID 0000-0002-1387-8686
Ricardo Ribeiro GamaHead and Neck Surgery Department, Barretos Cancer Hospital, Barretos, Brazil.ORCID 0000-0003-4406-8958
Giuseppe FanettiDivision of Radiotherapy, Centro di Riferimento Oncologico di Aviano (CRO) IRCCS, Aviano, PN, Italy.ORCID 0000-0002-9677-3176
Laura MossVelindre Cancer Centre, Velindre University NHS Trust, Cardiff, UK.
Johanna InhesternDepartment of Otorhinolaryngology, Oberhavelkliniken, Hennigsdorf, Germany.ORCID 0000-0003-4613-2810
Guy AndrySurgery Department, Jules Bordet Institute, Brussels, Belgium.ORCID 0000-0001-7410-6519
Harald RimmeleBundesverband Schilddrüsenkrebs - Ohne Schilddrüse leben e. V., Berlin, Germany.
Naomi KiyotaDepartment of Medical Oncology and Hematology, Cancer Center, Kobe University Hospital, Kobe, Japan.ORCID 0000-0001-8021-6116

Funding

European Organisation for Research and Treatment of Cancer 002/2017Japan Agency for Medical Research and Development 21ck0106498h0003
6 · The paper itself

Abstract

purposeThe purpose of this study was to investigate the impact of the type of data capture on the time and help needed for collecting patient-reported outcomes as well as on the proportion of missing scores.

methodsIn a multinational prospective study, thyroid cancer patients from 17 countries completed a validated questionnaire measuring quality of life. Electronic data capture was compared to the paper-based approach using multivariate logistic regression.

resultsA total of 437 patients were included, of whom 13% used electronic data capture. The relation between data capture and time needed was modified by the emotional functioning of the patients. Those with clinical impairments in that respect needed more time to complete the questionnaire when they used electronic data capture compared to paper and pencil (OR

conclusionsThe advantages of electronic data capture, such as real-time assessment and fewer data entry errors, may come at the price of more time required for data collection when the patients have mental health problems. As this is not uncommon in thyroid cancer, researchers need to choose the type of data capture wisely for their particular research question.

Indexed as

Patient Reported Outcome MeasuresQuality of LifeThyroid NeoplasmsAdultAgedData CollectionFemaleHumansMaleMiddle AgedProspective StudiesSurveys and QuestionnairesElectronic patient-reported outcomesHelp neededMissing scoresMode of administrationPaper–pencilSpeed

Identifiers

PMID38103143
PMCPMC11076317

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.