Evidence map›Paper›PMID 38097993›Full record

ArticleBMC palliative care2023

Exploring knowledge, attitude, and intention towards advance care planning, advance directive, and the patient self-determination act among hemodialysis patients.

Shang-Feng Tsai, Ching-Yi Chang, Jia-Yi Yang, Yu-Ying Ho, Ching-Ching Hsiao, Shu-Chuan Hsu, Shih-Yun Chen, Huan-Yi Lin, Te-Feng Yeh, Cheng-Hsu Chen

Abstract read
In one paragraph

Article in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Trial
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Shang-Feng TsaiDivision of Nephrology, Department of Internal Medicine, Taichung Veterans General Hospital, 160, Sec. 3, Taiwan Boulevard, Taichung, 407, Taiwan.
Ching-Yi ChangDepartment of Nursing, Taichung Veterans General Hospital, Taichung, Taiwan.
Jia-Yi YangDepartment of Ophthalmology, Taichung Veterans General Hospital, Taichung, Taiwan.
Yu-Ying HoDepartment of Nursing, Taichung Veterans General Hospital, Taichung, Taiwan.
Ching-Ching HsiaoDepartment of Nursing, Taichung Veterans General Hospital, Taichung, Taiwan.
Shu-Chuan HsuDepartment of Nursing, Taichung Veterans General Hospital, Taichung, Taiwan.
Shih-Yun ChenDepartment of Nursing, Taichung Veterans General Hospital, Taichung, Taiwan.
Huan-Yi LinDepartment of Nursing, Taichung Veterans General Hospital, Taichung, Taiwan.
Te-Feng Yeh *Department of Healthcare Administration, Central Taiwan University of Science and Technology, Taichung, Taiwan.
Cheng-Hsu Chen *Division of Nephrology, Department of Internal Medicine, Taichung Veterans General Hospital, 160, Sec. 3, Taiwan Boulevard, Taichung, 407, Taiwan. cschen920@gmail.com.

Funding

Taichung Veterans General Hospital and Central Taiwan University of Science and Technology TCVGH-CTUST1097702
6 · The paper itself

Abstract

backgroundHemodialysis holds the highest incidence and prevalence rate in Taiwan globally. However, the implementation of advance care planning (ACP), advance directives (AD), and patient self-determination acts (PSDA) remains limited. Our objective was to examine the current status of ACP, AD and PSDA and potential opportunities for enhancement.

methodsWe developed a novel questionnaire to assess individuals' knowledge, attitudes, and intentions regarding ACP, AD, and PSDA. We also collected baseline characteristics and additional inquiries for correlation analysis to identify potential factors. Student's t-test and Analysis of Variance were employed to assess significance.

resultsInitially, a cohort of 241 patients was initially considered for inclusion in this study. Subsequently, 135 patients agreed to participate in the questionnaire study, resulting in 129 valid questionnaires. Among these respondents, 76 were male (59.9%), and 53 were female (41.1%). Only 13.2% had signed AD. A significant portion (85.3%) indicated that they had not discussed their dialysis prognosis with healthcare providers. Additionally, a mere 14% engaged in conversations about life-threatening decisions. Ninety percent believed that healthcare providers had not furnished information about ACP, and only 30% had discussed such choices with their families. The findings revealed that the average standardized score for ACP and AD goals was 84.97, while the attitude towards PSDA received a standardized score of 69.94. The intention score stood at 69.52 in standardized terms. Potential candidates for ACP initiation included individuals aged 50 to 64, possessing at least a college education, being unmarried, and having no history of diabetes.

conclusionPatients undergoing hemodialysis exhibited a significant knowledge gap concerning ACP, AD, and the PSDA. Notably, a substantial number of dialytic patients had not received adequate information on these subjects. Nevertheless, they displayed a positive attitude, and a considerable proportion expressed a willingness to sign AD. It is imperative for nephrologists to take an active role in initiating ACP discussions with patients from the very beginning.

Indexed as

Advance Care PlanningPatient Self-Determination ActAdvance DirectivesFemaleHealth Knowledge, Attitudes, PracticeHumansIntentionMaleRenal DialysisUnited StatesAdvance care planning (ACP)Advance directive (AD)AttitudeHemodialysisIntentionKnowledgeLife-sustaining treatmentLife-sustaining treatment (LST)Patient right to autonomy actPatient self-determination act (PSDA)

Identifiers

PMID38097993
PMCPMC10720199

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.