Evidence map›Paper›PMID 38096760›Full record

ArticleJournal of pediatric nursing

Enhancing caregivers self-management for their children who require medical technology: A feasibility study for the COPE-STAR intervention.

Regena Spratling, Syeda Zahra Ali, Melissa Spezia Faulkner, Iris Feinberg, Matthew J Hayat

Open access · hybridAbstract read
In one paragraph

Article in Journal of pediatric nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.7field-weighted citation impact, top 29% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 3 citations in OpenAlex.

  1. Clinician insights into pediatric temporary feeding tube management: Unseen barriers, unclear roles revealed from a prospective mixed methods study.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 2 countries.

Regena SpratlingProfessor, School of Nursing, Byrdine F. Lewis College of Nursing and Health Professions, Georgia State University, 140 Decatur Street, Urban Life Building Room 950, Atlanta, GA 30303, USA. Electronic address: rspratling@gsu.edu.
Syeda Zahra AliDepartment of Population Health Sciences, School of Public Health, Georgia State University, Atlanta, GA, USA.
Melissa Spezia FaulknerAdjunct Professor, School of Nursing, Byrdine F. Lewis College of Nursing and Health Professions, Georgia State University, USA. Electronic address: mfaulkner@gsu.edu.
Iris FeinbergAssociate Director, Adult Literacy Research Center, College of Education and Human Development, Georgia State University, USA. Electronic address: ifeinberg2@gsu.edu.
Matthew J HayatChair & Professor of Biostatistics, Department of Population Health Sciences, School of Public Health, Byrdine F. Lewis College of Nursing & Health Professions (Joint), Georgia State University, USA. Electronic address: mhayat@gsu.edu.
Georgia State University · USDepartment of Health · TW

Funding

Web-based Modules to Support Young Children Who Require Medical Technology and Their CaregiversR15NR018037 · NINR · GEORGIA STATE UNIVERSITY · PI SPRATLING, REGENA · 2018 to 2018
$423k
NINR NIH HHS R15 NR018037
6 · The paper itself

Abstract

purposeTo test feasibility of the Creating Opportunities for Personal Empowerment: Symptom and Technology Management Resources intervention for caregivers of children who require medical technologies of tracheostomies and feeding tubes. DESIGN AND

methodsQuasi-experimental one group design with measures at baseline and at 4 weeks. Intervention feasibility was tested from August 2019-June 2021, including recruitment, retention, and adherence, and caregiver satisfaction. Caregiver and child characteristics and outcomes were assessed.

resultsCaregivers were enrolled (n = 22) and completed (n = 16) the study. Caregivers were primarily female (n = 21), were predominately Caucasian (n = 14, 64%) followed by African-American (n = 8, 36%), and Non-Hispanic/Latino (n = 18, 82%). Feasibility indicators of recruitment (92%), retention (73%), and adherence (100%) were satisfactory. Outcome measures of management of child's chronic condition, caregiver beliefs about managing their child's symptoms and medical technology, anxiety, and depressive symptoms remained stable. Caregivers agreed that the intervention was useful, easy to use, and acceptable, and had positive feedback.

conclusionsThis is a feasible and acceptable intervention. With further development and efficacy testing, the intervention has potential for use and expansion to a larger population of caregivers of children who require medical technology. PRACTICE IMPLICATIONS: Children who require medical technology have multiple complex chronic conditions and complex care needs at home. This intensive and focused care is provided by informal caregivers who need education and resources for their child's care. This intervention addressed caregiver management of common symptoms and medical technologies of children in the home setting.

Indexed as

CaregiversSelf-ManagementChildChronic DiseaseEducational StatusFeasibility StudiesFemaleHumansCaregiversFeasibility studyInterventionMedically complex childrenTechnology-dependent

Identifiers

PMID38096760
PMCPMC10932809
OpenAlexW4389722117

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.