ArticleThe Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association2025
Parents' Perception of the Benefit of Receiving a Patient Information Leaflet Prior to Attending a Craniofacial Multidisciplinary Team Appointment.
Article in The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
ObjectiveTo investigate how a patient information leaflet describing what to expect during a craniofacial multidisciplinary team (MDT) appointment is experienced by parents of children with craniofacial anomalies (CFAs) and whether it helps with preparation for the appointment.DesignCombination of qualitative and quantitative design.SettingNorwegian National Unit for Craniofacial Surgery.ParticipantsThirty-three parents of children with CFAs completed the questionnaire and fourteen were subsequently interviewed.InterventionsA patient information leaflet, sent to all parents before their MDT appointment.Main Outcome MeasuresDescriptive questionnaire data and interview data.ResultsAll parents (
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