Evidence map›Paper›PMID 38082438›Full record

ArticleResearch involvement and engagement2023

Opening up ideas: an advent calendar for patient and public engagement in clinical trials research.

Nicola L Harman, Kerrie McGiveron, Catrin Tudur Smith, Paula R Williamson, Heather Barrington

Open access · goldAbstract readLetter
In one paragraph

Article in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact, top 67% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 0 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Nicola L HarmanHealth Data Science, Institute of Population Health, University of Liverpool, Block F Waterhouse Building, Liverpool, UK. n.harman@liv.ac.uk.
Kerrie McGiveronHealth Data Science, Institute of Population Health, University of Liverpool, Block F Waterhouse Building, Liverpool, UK.
Catrin Tudur SmithHealth Data Science, Institute of Population Health, University of Liverpool, Block F Waterhouse Building, Liverpool, UK.
Paula R WilliamsonHealth Data Science, Institute of Population Health, University of Liverpool, Block F Waterhouse Building, Liverpool, UK.
Heather BarringtonHealth Data Science, Institute of Population Health, University of Liverpool, Block F Waterhouse Building, Liverpool, UK.
University of Liverpool · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The involvement of patients and the public in research is now an expectation in research with funders requesting a clear plan of involvement and engagement. In the United Kingdom involvement typically focuses on research prioritisation, design and delivery, in contrast activities that share the results of research or research methods more generally are considered to be engagement. Clinical trials tend to concentrate on involvement activities with less emphasis on engagement. To promote engagement activities in the context of clinical trials we asked people attending the 2022 International Clinical Trials Methodology Conference to share ideas on how we can best engage with patients and the public. Responses were reviewed and 22 themes identified. One suggestion was to create an advent calendar and so these 22 themes plus two from the authors were used as a daily tweet from the 1st to the 24th December 2022. Here we share these ideas and draw comparisons between engagement activities in research and traditions of the Christmas period. The ideas shared are not intended as a definitive list but instead a novel way to start discussions between experts by experience, researchers, health professionals and communities to facilitate co-production of meaningful engagement strategies.

Indexed as

Clinical trialsClinical trials methodologyPatient and public engagementPatient and public involvement

Identifiers

PMID38082438
PMCPMC10714500
OpenAlexW4389573534

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.