Evidence map›Paper›PMID 38082391›Full record

ArticleResearch involvement and engagement2023

Engaging communities to inform the development of a diverse cohort of cancer survivors: formative research for the eat move sleep study (EMOVES).

Ghilamichael Andemeskel, Nynikka R Palmer, Rena Pasick, Erin L Van Blarigan, Stacey A Kenfield, Rebecca E Graff, Michael Shaw, Wil Yu, Mayte Sanchez, Roberto Hernandez and 4 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.7field-weighted citation impact, top 22% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. NCI-Funded Cancer Epidemiology Survivor Cohorts: Overview, Progress, and Opportunities.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 5 institutions in 2 countries.

Ghilamichael AndemeskelHelen Diller Family Comprehensive Cancer Center, Office of Community Engagement, University of California, San Francisco, CA, USA. Ghilamichael.andemeskel@ucsf.edu.
Nynikka R PalmerDepartment of Urology, University of California, San Francisco, CA, USA.
Rena PasickSchool of Medicine, University of California, San Francisco, CA, USA.
Erin L Van BlariganDepartment of Urology, University of California, San Francisco, CA, USA.
Stacey A KenfieldDepartment of Urology, University of California, San Francisco, CA, USA.
Rebecca E GraffDepartment of Epidemiology and Biostatistics, University of California, San Francisco, CA, USA.
Michael ShawCommunity Advisory Board, Office of Community Engagement, University of California, San Francisco, CA, USA.
Wil YuCommunity Advisory Board, Office of Community Engagement, University of California, San Francisco, CA, USA.
Mayte SanchezCommunity Advisory Board, Office of Community Engagement, University of California, San Francisco, CA, USA.
Roberto HernandezCommunity Advisory Board, Office of Community Engagement, University of California, San Francisco, CA, USA.
Samuel L WashingtonDepartment of Urology, University of California, San Francisco, CA, USA.
Salma Shariff-MarcoDepartment of Epidemiology and Biostatistics, University of California, San Francisco, CA, USA.
Kim F RhoadsHelen Diller Family Comprehensive Cancer Center, Office of Community Engagement, University of California, San Francisco, CA, USA.
June M ChanDepartment of Urology, University of California, San Francisco, CA, USA.
University of California, San Francisco · USCounty of Mendocino · USHealth Alliance International · USMinistry of Culture · PEUCSF Helen Diller Family Comprehensive Cancer Center · US

Funding

Translational InformaticsP30CA082103 · NCI · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Jennifer Leigh Clarke · 1999 to 2026
$209.7M
Constructing a Relational Bridge to Achieve High-Quality Prostate Cancer Care for African AmericansK01CA211965 · NCI · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI PALMER, NYNIKKA · 2017 to 2022
$1.1M
NCI NIH HHS K01 CA211965NCI NIH HHS P30 CA082103
6 · The paper itself

Abstract

backgroundThere are more than 18 million cancer survivors in the United States. Yet, survivors of color remain under-represented in cancer survivorship research (Saltzman et al. in Contemp Clin Trials Commun 29:100986, 2022; Pang et al. in J Clin Oncol 34:3992-3999, 2016; Lythgoe et al. in Prostate Cancer Prostatic Dis 24:1208-1211, 2021). Our long-term goal is to enroll and follow a cohort of historically under-represented cancer survivors, to better understand modifiable risk factors that influence clinical and quality of life outcomes in these populations. Towards that goal, we describe herein how we applied community-based participatory research approaches to develop inclusive study materials for enrolling such a cohort.

methodsWe implemented community engagement strategies to inform and enhance the study website and recruitment materials for this cohort including: hiring a dedicated engagement coordinator/community health educator as a member of our team; working with the Helen Diller Family Comprehensive Cancer Center Office of Community Engagement (OCE) and Community Advisory Board members; presenting our educational, research, and study recruitment materials at community events; and establishing a community advisory group specifically for the study (4 individuals). In parallel with these efforts, 20 semi-structured user testing interviews were conducted with diverse cancer survivors to inform the look, feel, and usability of the study website.

resultsEngagement with community members was a powerful and important approach for this study's development. Feedback was solicited and used to inform decisions regarding the study name (eat move sleep, EMOVES), logo, study website content and imagery, and recruitment materials. Based on community feedback, we developed additional educational materials on healthy groceries and portion size in multiple languages and created a study video.

conclusionsIncluding an engagement coordinator as a permanent team member, partnering with the institutional community outreach and engagement resources (i.e., OCE), and allocating dedicated time and financial support for cultivating relationships with stakeholders outside the university were critical to the development of the study website and materials. Our community guided strategies will be tested as we conduct enrollment through community advisor networks and via the state cancer registry.

Identifiers

PMID38082391
PMCPMC10712178
OpenAlexW4389565451

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.