Evidence map›Paper›PMID 38072475›Full record

ArticleBMJ open2023

Eliciting preferences of persons with dementia and informal caregivers to support ageing in place in the Netherlands: a protocol for a discrete choice experiment.

Isabelle Vullings, Joost Wammes, Özgül Uysal-Bozkir, Carolien Smits, Nanon H M Labrie, J D Swait, Esther de Bekker-Grob, Janet L Macneil-Vroomen

Open access · goldAbstract readClinical Trial Protocol
In one paragraph

Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
1.7field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 1 country.

Isabelle VullingsGeriatrics, Amsterdam UMC Locatie AMC, Amsterdam, Noord-Holland, The Netherlands i.vullings@amsterdamumc.nl.ORCID 0000-0002-9604-3333
Joost WammesGeriatrics, Amsterdam UMC Locatie AMC, Amsterdam, Noord-Holland, The Netherlands.
Özgül Uysal-BozkirDepartment of Psychology, Education and Child Studies, Erasmus University Rotterdam, Erasmus School of Social and Behavioural Sciences, Rotterdam, Zuid-Holland, The Netherlands.
Carolien SmitsPharos Center of Expertise on Health Disparities, Utrecht, The Netherlands.
Nanon H M LabrieDepartment of Language, Literature and Communication, Vrije Universiteit Amsterdam, Amsterdam, Noord-Holland, The Netherlands.
J D SwaitErasmus Choice Modelling Centre, Erasmus University Rotterdam, Rotterdam, The Netherlands.
Esther de Bekker-GrobErasmus Choice Modelling Centre, Erasmus University Rotterdam, Rotterdam, The Netherlands.
Janet L Macneil-VroomenGeriatrics, Amsterdam UMC Locatie AMC, Amsterdam, Noord-Holland, The Netherlands.
Amsterdam University Medical Centers · NLErasmus University Rotterdam · NLVrije Universiteit Amsterdam · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionAgeing in place (AIP) for persons with dementia is encouraged by European governments and societies. Healthcare packages may need reassessment to account for the preferences of care funders, patients and informal caregivers. By providing insight into people's preferences, discrete choice experiments (DCEs) can help develop consensus between stakeholders. This protocol paper outlines the development of a Dutch national study to cocreate a healthcare package design methodology built on DCEs that is person-centred and helps support informal caregivers and persons with dementia to AIP. A subpopulation analysis of persons with dementia with a migration background is planned due to their high risk for dementia and under-representation in research and care. METHODS AND ANALYSIS: The DCE is designed to understand how persons with dementia and informal caregivers choose between different healthcare packages. Qualitative methods are used to identify and prioritise important care components for persons with dementia to AIP. This will provide a list of care components that will be included in the DCE, to quantify the care needs and preferences of persons with dementia and informal caregivers. The DCE will identify individual and joint preferences to AIP. The relative importance of each attribute will be calculated. The DCE data will be analysed with the use of a random parameters logit model. ETHICS AND DISSEMINATION: Ethics approval was waived by the Amsterdam University Medical Center (W23_112 #23.137). A study summary will be available on the websites of Alzheimer Nederland, Pharos and Amsterdam Public Health institute. Results are expected to be presented at (inter)national conferences, peer-reviewed papers will be submitted, and a dissemination meeting will be held to bring stakeholders together. The study results will help improve healthcare package design for all stakeholders.

Indexed as

CaregiversDementiaAgedAgingHumansIndependent LivingNetherlandsPatient Preferencedecision makingdementiapatient participation

Identifiers

PMID38072475
PMCPMC10729270
OpenAlexW4389522864

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.