Evidence map›Paper›PMID 38068491›Full record

ArticleJournal of clinical medicine2023

Health-Related Quality of Life after Pediatric Traumatic Brain Injury: A Quantitative Comparison between Children's and Parents' Perspectives of the QOLIBRI-KID/ADO Questionnaire.

Katrin Cunitz, Ivana Holloway, Anne Harzendorf, Sven Greving, Marina Zeldovich, Ugne Krenz, Dagmar Timmermann, Inga K Koerte, Michaela Veronika Bonfert, Steffen Berweck and 9 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of clinical medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Katrin CunitzInstitute of Psychology, University of Innsbruck, Universitaetsstr. 5-7, 6020 Innsbruck, Austria.ORCID 0000-0001-5530-8190
Ivana HollowayInstitute of Medical Psychology and Medical Sociology, University Medical Center Goettingen, Waldweg 37A, 37073 Goettingen, Germany.ORCID 0000-0002-9542-883X
Anne HarzendorfInstitute of Medical Psychology and Medical Sociology, University Medical Center Goettingen, Waldweg 37A, 37073 Goettingen, Germany.
Sven GrevingInstitute of Medical Psychology and Medical Sociology, University Medical Center Goettingen, Waldweg 37A, 37073 Goettingen, Germany.
Marina ZeldovichInstitute of Psychology, University of Innsbruck, Universitaetsstr. 5-7, 6020 Innsbruck, Austria.ORCID 0000-0003-0172-9904
Ugne KrenzInstitute of Medical Psychology and Medical Sociology, University Medical Center Goettingen, Waldweg 37A, 37073 Goettingen, Germany.ORCID 0000-0002-0518-8781
Dagmar TimmermannInstitute of Medical Psychology and Medical Sociology, University Medical Center Goettingen, Waldweg 37A, 37073 Goettingen, Germany.
Inga K KoertecBRAIN, Department of Child and Adolescent Psychiatry, Psychosomatics, and Psychotherapy, LMU University Hospital, Ludwig-Maximilian University, Nussbaumstrasse 5, 80336 Munich, Germany.ORCID 0000-0003-1281-9286
Michaela Veronika BonfertDepartment of Pediatric Neurology and Developmental Medicine, LMU Center for Development and Children with Medical Complexity, Dr. Von Hauner Children's Hospital, LMU University Hospital, Haydnstr. 5, 80336 Munich, Germany.ORCID 0000-0003-0995-9050
Steffen BerweckSpecialist Center for Paediatric Neurology, Neurorehabilitation and Epileptology, Schoen Klinik, Krankenhausstraße 20, 83569 Vogtareuth, Germany.
Matthias KieslichDepartment of Paediatric Neurology, Hospital of Goethe University, Theodor-Stern-Kai 7, 60590 Frankfurt am Main, Germany.
Knut BrockmannInterdisciplinary Pediatric Center for Children with Developmental Disabilities and Severe Chronic Disorders, Department of Pediatrics and Adolescent Medicine, University Medical Center, Robert-Koch-Str. 40, 37075 Goettingen, Germany.ORCID 0000-0001-6823-9091
Maike RoedigerDepartment of Pediatrics and Adolescent Medicine, General Pediatrics, Intensive Care Medicine and Neonatology, University Hospital Muenster, Albert-Schweitzer-Campus 1, 48149 Muenster, Germany.
Anna BuchheimInstitute of Psychology, University of Innsbruck, Universitaetsstr. 5-7, 6020 Innsbruck, Austria.ORCID 0000-0002-1339-5246
Nada AndelicResearch Centre for Habilitation and Rehabilitation Models and Services (CHARM), Department of Health and Society, University of Oslo, 0313 Oslo, Norway.ORCID 0000-0002-3719-4406
Michael LendtNeuropediatrics, St. Mauritius Therapeutic Clinic, Strümper Straße 111, 40670 Meerbusch, Germany.
Michael StaeblerHegau-Jugendwerk GmbH/Neurological Rehabilitation Center for Children, Adolescents and Young Adults, Kapellenstr. 31, 78262 Gailingen am Hochrhein, Germany.
Holger MuehlanDepartment of Health and Prevention, University of Greifswald, Robert-Blum-Str. 13, 17487 Greifswald, Germany.ORCID 0000-0001-8048-5682
Nicole von SteinbuechelInstitute of Psychology, University of Innsbruck, Universitaetsstr. 5-7, 6020 Innsbruck, Austria.

Funding

Dr. Senckenbergische Stiftung/Clementine Kinderhospital Dr. Christ'sche Stiftungen (Germany), and Uniscientia Stiftung (Switzerland) 0
6 · The paper itself

Abstract

Pediatric health-related quality of life (HRQoL) as a measure of subjective wellbeing and functioning has received increasing attention over the past decade. HRQoL in children and adolescents following pediatric traumatic brain injury (pTBI) has been poorly studied, and performing adequate measurements in this population is challenging. This study compares child/adolescent and parent reports of HRQoL following pTBI using the newly developed Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO) questionnaire. Three hundred dyads of 8-17-year-old children/adolescents and their parents were included in the study. The parent-child agreement, estimated using intraclass correlation coefficients and Cohen's κ, displayed poor to moderate concordance. Approximately two-fifths of parents (39.3%) tended to report lower HRQoL for their children/adolescents on the total QOLIBRI-KID/ADO score. At the same time, about one-fifth (21.3%) reported higher HRQoL Total scores for their children/adolescents. The best agreement for parents rating adolescents (aged 13-17 years) was found in terms of the Total score and the Cognition and Self scale scores. To date, parent-reported HRQoL has been the preferred choice in pediatric research after TBI. However, with a parent-child disagreement of approximately 60%, our results highlight the importance of considering self-reports for children/adolescents capable of answering or completing the HRQoL measures.

Indexed as

children and adolescentsdisease-specific health-related quality of lifeQOLIBRI-KID/ADOself- and proxy reportstraumatic brain injury

Identifiers

PMID38068491
PMCPMC10707423

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.