Evidence map›Paper›PMID 38062213›Full record

ArticleSpinal cord2024

Experiences of people with spinal cord injuries readmitted for continence-related complications: a qualitative descriptive study.

Alessio Conti, Elena Pradovera, Michela Luciani, Miriam Tesio, Elena Casabona, Riccardo Sperlinga, Sara Campagna

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Article in Spinal cord, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Alessio ContiDepartment of Public Health and Paediatric Sciences, University of Turin, Turin, Italy.ORCID 0000-0003-4301-8924
Elena PradoveraDepartment of Public Health and Paediatric Sciences, University of Turin, Turin, Italy.
Michela LucianiDepartment of Medicine and Surgery, University of Milano Bicocca, Milan, Italy.
Miriam TesioCardinal Massaia Hospital of Asti, Asti, Italy.
Elena CasabonaDepartment of Public Health and Paediatric Sciences, University of Turin, Turin, Italy. elena.casabona@unito.it.ORCID 0000-0002-6841-6059
Riccardo SperlingaDepartment of Continuing Education and Training in the Health Professions, Mauriziano Hospital of Turin, Turin, Italy.ORCID 0000-0002-6609-5933
Sara CampagnaDepartment of Public Health and Paediatric Sciences, University of Turin, Turin, Italy.ORCID 0000-0003-2722-1818

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

STUDY

designQualitative descriptive.

objectivesTo describe the experiences of people with Spinal Cord Injury (SCI) re-admitted to the hospital due to continence-related complications.

settingInpatient service of a large spinal unit in North-West of Italy.

methodsSemi-structured interviews were conducted on a purposive sample of people with SCI (n = 11; age range 22-66 years, n = 5 females, n = 6 with cervical injuries), audio-recorded, and transcribed verbatim (duration range 38-52 min). Data were analysed inductively using the thematic analysis approach as described by Braun and Clarke.

resultsThree main themes were identified: (i) managing the frustration of continence-related complications; (ii) finding your way to deal with continence-related complications; (iii) identifying precise needs to deal with continence-related complications. Obtained findings highlighted the perceived emotional and physical burden suffered by people with SCI and their caregivers regarding the constant look for solutions and renounces to social participation, the different strategies implemented to address continence-related complications, and the unmet or partially met needs of people with SCI regarding support in transition to the community, infrastructure, and reliable information or education.

conclusionsContinence-related complications have a significant impact on the lives of people with SCI and their families. Interventions using technological tools and peer participation could reduce the burden associated with continence-related complications. Specific instruments are needed to facilitate evaluation, goal setting, and promote discussion of continence to allow HCPs to support people with SCI. Structured follow-up for SCI survivors should also focus on their needs to improve knowledge, facilitate decision making, and promote preventive behaviours.

Indexed as

Spinal Cord InjuriesAdultAgedCaregiversEmotionsFemaleHospitalizationHumansMiddle AgedQualitative ResearchYoung Adult

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.