Evidence map›Paper›PMID 38057802›Full record

ArticleInternational journal for equity in health2023

We're here too: child health information-seeking experiences and preferences of Red River Métis families - a qualitative study.

Lisa Knisley, S Michelle Driedger, Lisa Hartling, Frances Chartrand, Julianne Sanguins, Shannon D Scott

Abstract read
In one paragraph

Article in International journal for equity in health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Lisa KnisleyChildren's Hospital Research Institute of Manitoba, Winnipeg, Canada.
S Michelle DriedgerRady Faculty of Health Sciences, Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada.
Lisa HartlingAlberta Research Centre for Health Evidence, Department of Pediatrics, University of Alberta, Edmonton, AB, Canada.
Frances ChartrandManitoba Métis Federation, Winnipeg, Canada.
Julianne SanguinsRady Faculty of Health Sciences, Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada.
Shannon D ScottFaculty of Nursing, Edmonton Clinic Health Academy, University of Alberta, Level 3, 11405 87 Avenue, Edmonton, Canada. shannon.scott@ualberta.ca.

Funding

Canada Research Chairs 231687Canada Research Chairs NAManitoba Metis Federation NASPOR Evidence Alliance NAStollery Children's Hospital Foundation 2677
6 · The paper itself

Abstract

backgroundRed River Métis families need access to meaningful and appropriate resources when their children are sick. At the invitation of the Manitoba Métis Federation (MMF) to partner in this research, our aim was to understand Red River Métis parents' experiences and preferences for seeking child health information when their child is acutely ill, to inform the adaptation of existing parent resources.

methodsA qualitative descriptive approach underpinned by a participatory paradigm guided this study. Semi-structured interviews were conducted with 19 Red River Métis parents and Elders via Zoom or telephone. An inductive thematic analysis approach was used to explore patterns and themes across the data.

resultsAnalysis generated four themes: (1) We're here too; (2) We are not all the same; (3) Finding trustworthy information; and (4) Information needs to be widely available. Red River Métis pride was prominent in the results. Parents provided tangible ways to modify existing parent resources, including adding information on how to access Elders, healers and/or traditional medicines and showing different family structures, transport, living situations, Métis names, and incorporating Métis languages. While most parents reported looking for child health information online, they also stressed the need to provide multiple options, including information sheets, recognizing that parents seek information in different contexts. Parents also emphasized the importance of accessible, safe spaces to find child health information, including local schools, community centres, healthcare organizations and the MMF.

conclusionThere is a lack of child health information created specifically for Red River Métis families. The development of this information can support their information needs and preferences and the ongoing efforts to revitalize Red River Métis culture and language. Study findings will inform the adaptation and dissemination of existing child health resources to ensure they reflect Red River Métis parents' information needs and preferences. This research is a critical step in addressing an identified need for Red River Métis families to have culturally relevant and meaningful child health resources, and in the pursuit of equitable care for all children in Canada.

trial registrationN/A.

Indexed as

Child HealthInformation Seeking BehaviorAgedCanadaChildHumansParentsQualitative ResearchChild healthIndigenousInformationKnowledge mobilizationKnowledge translationMétisPediatricsRed River Métis

Identifiers

PMID38057802
PMCPMC10699047

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.