Evidence map›Paper›PMID 38054428›Full record

SynthesisPalliative medicine2024

A systematic practice review: Providing palliative care for people with Parkinson's disease and their caregivers.

Michela Garon, Christiane Weck, Kristina Rosqvist, Per Odin, Anette Schrag, Ülle Krikmann, David J Pedrosa, Angelo Antonini, Stefan Lorenzl, Sandra Martins Pereira and 1 more

Abstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Palliative medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Michela GaronParkinson and Movement Disorders Unit, Study Center for Neurodegeneration (CESNE), Department of Neuroscience, University of Padua, Via Giustiniani 2, 35128, Padua, Italy.
Christiane WeckInstitute of Palliative Care, Paracelsus Medical University, Salzburg, Austria.
Kristina RosqvistDivision of Neurology, Department of Clinical Sciences Lund, Lund University, Lund, Sweden.
Per OdinDivision of Neurology, Department of Clinical Sciences Lund, Lund University, Lund, Sweden.
Anette SchragDepartment of Clinical Neurosciences, UCL Queen Square Institute of Neurology, University College London, London, UK.
Ülle KrikmannDepartment of Neurology and Neurosurgery, Institute of Clinical Medicine, University of Tartu, Tartu, Estonia.
David J PedrosaPhilipps University Marburg, Marburg, Germany.
Angelo AntoniniParkinson and Movement Disorders Unit, Study Center for Neurodegeneration (CESNE), Department of Neuroscience, University of Padua, Via Giustiniani 2, 35128, Padua, Italy.
Stefan LorenzlInstitute of Palliative Care, Paracelsus Medical University, Salzburg, Austria.
Sandra Martins PereiraEthics and Sustainability Research Area: Palliative Care Research, CEGE: Research Centre in Management and Economics, Católica Porto Business School, Universidade Católica Portuguesa, Porto, Portugal.ORCID 0000-0003-4113-8957
Piret PaalInstitute of Palliative Care, Paracelsus Medical University, Salzburg, Austria.ORCID 0000-0002-1341-3248

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPeople with Parkinson's disease has significant and increasing physical, psychosocial and spiritual needs, as well as problems with coordination and continuity of care. Despite the benefits that palliative care could offer, there is no consensus on how it should be delivered.

aimThe aim of this study is to provide a pragmatic overview of the evidence to make clinical recommendations to improve palliative care for people with Parkinson's disease and their caregivers.

designA systematic review method was adopted to determine the strength of evidence, supported by feedback from an expert panel, to generate the 'do', 'do not do' and 'do not know' recommendations for palliative care. DATA SOURCES: Searches were conducted via OVID to access CINAHL, MEDLINE, EMBASE and the Cochrane Library from 01/01/2006 to 31/05/2021. An additional search was conducted in December 2022. The search was limited to articles that included empirical studies of approaches to enabling palliative care.

resultsA total of 62 studies met inclusion criteria. There is evidence that education about palliative care and movement disorders is essential. palliative care should be multi-disciplinary, individualised and coordinated. Proactive involvement and support of caregivers throughout the illness is recommended. Limited data provide referral indicators for palliative care integration. Discussions about advance care planning should be held early.

conclusionsConsideration of palliative care integration based on symptom burden and personal preferences, coordination and continuity of care are needed to maintain the quality of life of people with Parkinson's disease and their caregivers.

Indexed as

Advance Care PlanningParkinson DiseaseCaregiversHumansPalliative CareQuality of Lifecaregiversclinical guidelinepalliative careParkinson’s diseasequality of life

Identifiers

PMID38054428
PMCPMC10798024

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.