Evidence map›Paper›PMID 38049861›Full record

ArticleBMC health services research2023

Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England.

Emma L Taylor, Paul A Thompson, Nicholas Manktelow, Samantha Flynn, David Gillespie, Jill Bradshaw, Nick Gore, Ashley Liew, Mark Lovell, Kate Sutton and 7 more

Abstract read
In one paragraph

Article in BMC health services research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Emma L Taylor *Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.
Paul A Thompson *Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK. Paul.Thompson.2@warwick.ac.uk.
Nicholas ManktelowCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.
Samantha FlynnCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.
David GillespieCentre for Trials Research, Cardiff University, Cardiff, CF14 4YS, UK.
Jill BradshawTizard Centre, University of Kent, Canterbury, CT2 7NF, UK.
Nick GoreTizard Centre, University of Kent, Canterbury, CT2 7NF, UK.
Ashley LiewCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.
Mark LovellTees, Esk and Wear Valleys, NHS Foundation Trust, Rosewood Centre, Acklam Road Hospital, Acklam Road, Middlesbrough, TS5 4EE, UK.
Kate SuttonLearning Disability and Autism Programme, NHS England, London, UK.
Caroline RichardsSchool of Psychology/ UK & Cerebra Network, University of Birmingham, Edgbaston, Birmingham, B15 2TT, UK.
Stavros PetrouNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.
Peter E LangdonCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.
Gemma GrantWarwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.
Vivien CooperThe Challenging Behaviour Foundation, Chatham, Kent, ME4 6BE, UK.
Kate SeersWarwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.
Richard P HastingsCentre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.

Funding

National Institute for Health Research (NIHR) NIHR 129577
6 · The paper itself

Abstract

backgroundOne in five children with an intellectual disability in the UK display behaviours that challenge. Despite associated impacts on the children themselves, their families, and services, little research has been published about how best to design, organise, and deliver health and care services to these children. The purpose of this study was to describe how services are structured and organised ("service models") in England for community-based health and care services for children with intellectual disability who display behaviours that challenge.

methodsSurvey data about services were collected from 161 eligible community-based services in England. Staff from 60 of these services were also interviewed. A combination of latent class and descriptive analysis, coupled with consultation with family carers and professionals was used to identify and describe groupings of similar services (i.e., "service models").

resultsThe latent class analysis, completed as a first step in the process, supported a distinction between specialist services and non-specialist services for children who display behaviours that challenge. Planned descriptive analyses incorporating additional study variables were undertaken to further refine the service models. Five service models were identified: Child and Adolescent Mental Health Services (CAMHS) (n = 69 services), Intellectual Disability CAMHS (n = 28 services), Children and Young People Disability services (n = 25 services), Specialist services for children who display behaviours that challenge (n = 27 services), and broader age range services for children and/or adolescents and adults (n= 12 services).

conclusionsOur analysis led to a typology of five service models for community health and care services for children with intellectual disabilities and behaviours that challenge in England. Identification of a typology of service models is a first step in building evidence about the best provision of services for children with intellectual disabilities who display behaviours that challenge. The methods used in the current study may be useful in research developing service typologies in other specialist fields of health and care. STUDY REGISTRATION: Trial Registration: Current Controlled Trials ISRCTN88920546, Date assigned 05/07/2022.

Indexed as

Intellectual DisabilityAdolescentAdultCaregiversChildCommunity Health ServicesEnglandHumansSurveys and QuestionnairesBehaviours that challengeChallenging behaviourChildrenCommunity servicesIntellectual disabilitiesLearning disabilitiesMappingNHSService models

Identifiers

PMID38049861
PMCPMC10696826

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.