Evidence map›Paper›PMID 38049708›Full record

ArticleJournal of religion and health2024

Meaning in Life in Late-Stage Parkinson's Disease: Results from the Care of Late-Stage Parkinsonism Study (CLaSP) in Six European Countries.

Sarah K Bublitz, Cornelia Brandstötter, Martin Fegg, Joaquim J Ferreira, Per Odin, Bastiaan R Bloem, Wassilios G Meissner, Richard Dodel, Anette Schrag, Stefan Lorenzl

Open access · hybridAbstract readMulticenter Study
In one paragraph

Article in Journal of religion and health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
0.6field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it, 3 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Review
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 7 institutions in 8 countries.

Sarah K BublitzInstitute of Palliative Care, Paracelsus Medical University in Salzburg, Strubergasse 21, 5020, Salzburg, Austria. sarah.bublitz@pmu.ac.at.ORCID http://orcid.org/0000-0003-3258-543X
Cornelia BrandstötterInstitute of Palliative Care, Paracelsus Medical University in Salzburg, Strubergasse 21, 5020, Salzburg, Austria.
Martin FeggPsychotherapeutic Practice, Munich, Germany.
Joaquim J FerreiraFaculty of Medicine, Molecular Medicine Institute, The University of Lisbon, Lisbon, Portugal.
Per OdinDivision of Neurology, Department of Clinical Sciences, Lund University, Skane University Hospital, Lund, Sweden.
Bastiaan R BloemDepartment of Neurology, Centre of Expertise for Parkinson and Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Centre, Nijmegen, The Netherlands.
Wassilios G MeissnerCHU Bordeaux, Service de Neurologie des Maladies Neurodégénératives, IMNc, CRMR AMS, NS-Park/FCRIN Network, 33000, Bordeaux, France.
Richard DodelDepartment of Geriatric Medicine, University Hospital Essen, Essen, Germany.
Anette SchragQueen Square Institute of Neurology, University College London, London, UK.
Stefan LorenzlInstitute of Palliative Care, Paracelsus Medical University in Salzburg, Strubergasse 21, 5020, Salzburg, Austria.
Paracelsus Medical University · ATCentre National de la Recherche Scientifique · FREssen University Hospital · DELund University · SENational Hospital for Neurology and Neurosurgery · GBRadboud University Nijmegen · NLUniversity of Lisbon · PT

Funding

EU Joint Programme - Neurodegenerative Disease Research 01ED1403AEU Joint Programme - Neurodegenerative Disease Research 01ED1403BEU Joint Programme - Neurodegenerative Disease Research 733051003EU Joint Programme - Neurodegenerative Disease Research ANR-13-JPHC-0001-07EU Joint Programme - Neurodegenerative Disease Research ES/L009250/1EU Joint Programme - Neurodegenerative Disease Research HC/0002/2012EU Joint Programme - Neurodegenerative Disease Research HC-559-002
6 · The paper itself

Abstract

The Care of Late-Stage Parkinsonism (CLaSP) study is a longitudinal, multicentre, prospective cohort study to assess the needs and provision of care for people with late-stage Parkinson's disease and their caregivers in six European countries. As a cross-sectional study within the CLaSP study, 509 people with Parkinson's disease completed the "Schedule-for-Meaning-in-Life-Evaluation" (SMiLE) questionnaire. We compared the results to those of a representative sample of healthy participants (n = 856). People with late-stage Parkinson's disease reported family, partnership and spirituality as the greatest areas of importance. Overall, they had lower SMiLE indices compared to healthy participants. People with late-stage Parkinson's disease rated the importance of core meaning in life areas (namely family, social relations and health) as significantly lower than the representative cohort and they also rated satisfaction as significantly lower in most areas. In conclusion, people with late-stage Parkinson's disease do have areas where they can find meaning, such as family, partnership and spirituality. However, they indicate a lack of fulfilment of their individual MiL, reflected by low satisfaction rates in the majority of meaning in life categories. The need for spiritual support for people with Parkinson's disease indicates the important role of chaplains to help people with Parkinson's disease maintain meaning in life.

Indexed as

Parkinson DiseaseAgedAged, 80 and overCaregiversCross-Sectional StudiesEuropeFemaleHumansLongitudinal StudiesMaleMiddle AgedPersonal SatisfactionProspective StudiesQuality of LifeSpiritualitySurveys and QuestionnairesCopingLate-stage Parkinson’s diseaseMeaning in lifeResponse shift

Identifiers

PMID38049708
PMCPMC11060989
OpenAlexW4389334184

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.