Evidence map›Paper›PMID 38041060›Full record

ReviewBMC palliative care2023

Palliative care for children: methodology for the development of a national clinical practice guideline.

Kim C van Teunenbroek, Leontien C M Kremer, A A Eduard Verhagen, Johannes M A Verheijden, Hester Rippen, Brigitt C M Borggreve, Erna M C Michiels, Renée L Mulder, Dutch Paediatric Palliative Care Guideline Panel

Open access · goldAbstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 3 pooled it
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 3 syntheses or guidelines pooled it, 5 citations in OpenAlex.

  1. Guideline
  2. Pooled it
  3. Guideline
  4. Review
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 7 institutions in 1 country.

Kim C van TeunenbroekPrincess Máxima Centre for Pediatric Oncology, Utrecht, The Netherlands. k.c.vanteunenbroek@prinsesmaximacentrum.nl.
Leontien C M KremerPrincess Máxima Centre for Pediatric Oncology, Utrecht, The Netherlands.
A A Eduard VerhagenDepartment of Paediatrics, Beatrix Children's Hospital, University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands.
Johannes M A VerheijdenDutch Knowledge Centre for Children's Palliative Care, Utrecht, the Netherlands.
Hester RippenStichting Kind en Ziekenhuis, Utrecht, the Netherlands.
Brigitt C M Borggrevethe Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, the Netherlands.
Erna M C MichielsPrincess Máxima Centre for Pediatric Oncology, Utrecht, The Netherlands.
Renée L MulderPrincess Máxima Centre for Pediatric Oncology, Utrecht, The Netherlands.
Dutch Paediatric Palliative Care Guideline Panel
University of Groningen · NLPrincess Máxima Center · NLEmma Kinderziekenhuis · NLNetherlands Comprehensive Cancer Organisation · NLStichting Kind en Groei · NLUniversity Medical Center Groningen · NLWilhelmina Children's Hospital · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundProvision of paediatric palliative care for children with life-threatening or life-limiting conditions and their families is often complex. Guidelines can support professionals to deliver high quality care. Stakeholders expressed the need to update the first Dutch paediatric palliative care guideline with new scientific literature and new topics. This paper provides an overview of the methodology that is used for the revision of the Dutch paediatric palliative care guideline and a brief presentation of the identified evidence.

methodsThe revised paediatric palliative care guideline was developed with a multidisciplinary guideline panel of 72 experts in paediatric palliative care and nine (bereaved) parents of children with life-threatening or life-limiting conditions. The guideline covered multiple topics related to (refractory) symptom treatment, advance care planning and shared-decision making, organisation of care, psychosocial care, and loss and bereavement. We established six main working groups that formulated 38 clinical questions for which we identified evidence by updating two existing systematic literature searches. The GRADE (CERQual) methodology was used for appraisal of evidence. Furthermore, we searched for additional literature such as existing guidelines and textbooks to deal with lack of evidence.

resultsThe two systematic literature searches yielded a total of 29 RCTs or systematic reviews of RCTs on paediatric palliative care interventions and 22 qualitative studies on barriers and facilitators of advance care planning and shared decision-making. We identified evidence for 14 out of 38 clinical questions. Furthermore, we were able to select additional literature (29 guidelines, two textbooks, and 10 systematic reviews) to deal with lack of evidence.

conclusionsThe revised Dutch paediatric palliative care guideline addresses many topics. However, there is limited evidence to base recommendations upon. Our methodology will combine the existing evidence in scientific literature, additional literature, expert knowledge, and perspectives of patients and their families to provide recommendations.

Indexed as

Advance Care PlanningPalliative CareChildDecision Making, SharedHumansParentsPractice Guidelines as TopicClinical practice guidelineEvidence-based medicinePaediatric palliative care

Identifiers

PMID38041060
PMCPMC10691037
OpenAlexW4389225758

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.