ArticleBMJ open2023
Sikh and Muslim perspectives on kidney transplantation: phase 1 of the DiGiT project - a qualitative descriptive study.
Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04327167 (Digital Intervention for Ethnic Groups in Transplantation), which is not on this map. Not yet cited in PubMed.
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The trial behind it
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Digital Intervention for Ethnic Groups in Transplantation (DIGIT)
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Authors and funding
7 authors at 4 institutions in 1 country.
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Abstract
objectivesKidney transplantation offers patients better quality of life and survival compared with dialysis. The risk of end stage renal disease is higher among ethnic minorities and they experience longer wait times on transplant lists. This inequality stems from a high need for kidney transplantation combined with a low rate of deceased donation among ethnic minority groups. This study aimed to explore the perspectives around living donor kidney transplantation of members of the Sikh and Muslim communities with an aim to develop a digital intervention to overcome any barriers.
designA qualitative descriptive study using in person focus groups.
settingUniversity Teaching Hospital and Transplant Centre.
participantsConvenience sampling of participants from the transplant population. Three focus groups were held with 20 participants, all were of South Asian ethnicity belonging to the Sikh and Muslim communities.
methodsInterviews were digitally audio-recorded and transcribed verbatim; transcripts were analysed thematically.
resultsFour themes were identified: (a) religious issues; (b) lack of knowledge within the community; (c) time; (d) cultural identification with transplantation.
conclusionsNot only is the information given and when it is delivered important, but also the person giving the information is crucial to enhance consideration of live donor kidney transplantation. Information should be in a first language where possible and overtly align to religious considerations. A more integrated approach to transplantation counselling should be adopted which includes healthcare professionals and credible members of the target cultural group. TRIAL REGISTRATION NUMBER: NCT04327167.
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