ArticleJournal of autism and developmental disorders2024
Racial and Practical Barriers to Diagnostic and Treatment Services for Black Families of Autistic Youth: A Mixed-Method Exploration.
Article in Journal of autism and developmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed, 16 citations in OpenAlex.
- Parent Support Group for Korean Immigrant Families of Individuals With Autism and Developmental Disabilities: Use of Academic-Community Partnership.American journal of speech-language pathology · 2026Article
- Change Trajectories During Parent-Child Interaction Therapy for Autistic Children and Their Caregivers.Autism research : official journal of the International Society for Autism Research · 2026Article
- "I'm His Voice": Parent Perspectives on Obtaining an Autism Diagnosis and Services and the Influence of Personal and Cultural Factors.Journal of autism and developmental disorders · 2026Article
- Care pathways, service access, and psychosociaasl support needs in children and adolescents with autism spectrum disorder: a narrative review.Frontiers in public health · 2026Review
- Understanding disparities in autism diagnosis and care: A socioecological perspective.PLOS mental health · 2026Article
- Collaborating with an autism community advisory board to develop a family-based, neurodiversity-affirming intervention: PCIT-Autism.Research involvement and engagement · 2025Article
- The Role of Stigma in the Autism Diagnostic and Intervention Process: Perspectives of Black Families in the Southeastern US.Journal of autism and developmental disorders · 2025Article
- Common and rare variant genetic contributions in African Americans with autism.medRxiv : the preprint server for health sciences · 2025Article
- Introduction to the Forum: Intersectional Approaches to Language in Autism.Perspectives of the ASHA special interest groups · 2025Article
- Exploring Factors of Diagnostic Timing Among Black Autistic Youth.Journal of autism and developmental disorders · 2025Article
- Navigating racism, stigma, and autism services: A scoping review of the lived experiences of racially and ethnically minoritized families.PLOS mental health · 2025Article
- A qualitative analysis of a culturally adapted PCIT training for black and latine clinicians: creating communities for providers of autistic youth.Frontiers in child and adolescent psychiatry · 2025Article
- Services in Minoritized Autistic Adolescents and Adults Varying in Language Skills.Seminars in speech and language · 2024Article
- Resilience and strengths in the Black autism community in the United States: A scoping review.Autism research : official journal of the International Society for Autism Research · 2024Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The present study explored the role race-related barriers and practical barriers to treatment participation play in treatment effectiveness and satisfaction among Black families with autistic youth using a mixed-method approach. In a sample of Black caregivers with autistic youth (N = 101), multiple regressions were conducted to examine the impact of reported racial and practical barriers on parental stress, treatment effectiveness, and treatment satisfaction. Caregivers provided further narratives on their experience navigating diagnostic and treatment services in qualitative interviews. The study demonstrated that Black caregivers of autistic youth are still encountering several racial and logistical barriers when seeking treatment and diagnostic services for their children. These barriers negatively impact caregiver stress and caregiver perceived treatment quality. Contrary to the barriers and stress experienced by Black caregivers, caregivers are generally satisfied with the treatments they are utilizing and find them helpful. The narratives told by caregivers further elucidate the tumultuous experiences of Black caregivers as they seek diagnostic and treatment services for their children. An experience that may be worsened by family, professional, and systemic barriers, and can be improved by advocacy, acceptance, peer and community support, and increased knowledge. Black families of autistic youth call for increased compassion, support, training, and humility among professionals who serve autistic youth.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.