Evidence map›Paper›PMID 38038630›Full record

ArticleAging & mental health

'It's a lonely journey': caregiving experiences and psychosocial distress among Chinese American dementia family caregivers.

Y Alicia Hong, Kang Shen, Hae-Ra Han, Van Ta Park, Huixing Kate Lu, Carol Cleaveland

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Aging & mental health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
2.4field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 11 citations in OpenAlex.

  1. Trial
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Y Alicia HongDepartment of Health Administration and Policy, College of Public Health, George Mason University, Fairfax, VA, USA.
Kang ShenDepartment of Health Administration and Policy, College of Public Health, George Mason University, Fairfax, VA, USA.
Hae-Ra HanSchool of Nursing, Johns Hopkins University, Baltimore, MD, USA.
Van Ta ParkDepartment of Community Health Systems, School of Nursing, University of California, San Francisco, CA, USA.
Huixing Kate LuChinese Culture and Community Service Center, Inc, Gaithersburg, MD, USA.
Carol CleavelandDepartment of Social Work, College of Public Health, George Mason University, Fairfax, VA, USA.
George Mason University · USCancer Support Community · USJohns Hopkins University · USUnity Health System · US

Funding

Collaborative Approach for Asian Americans, Native Hawaiians, and Pacific Islanders Research and Education (CARE) 2.0R01AG083926 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Joshua Grill, Van My Ta Park · 2023 to 2026
$12.9M
Roybal Translational Research Center to Promote Context-Specific Caregiving of Community-Dwelling Persons Living with Alzheimer's Disease or Related DisordersP30AG064200 · NIA · EMORY UNIVERSITY · PI Fayron Recha Epps · 2019 to 2026
$8.6M
NIA NIH HHS P30 AG064200NIA NIH HHS R01 AG083926
6 · The paper itself

Abstract

objectivesChinese American family caregivers of persons with Alzheimer's disease and related dementia (ADRD) are a vulnerable but understudied population. The goal of this qualitative study was to examine their caregiving experiences and psychosocial distress process and explore intervention strategies.

methodsIn-depth individual interviews were conducted with 18 Chinese American dementia caregivers. All interviews were transcribed verbatim; thematic content analysis was conducted to construct a conceptual framework.

resultsAll participants reported high levels of caregiving stress associated with care-recipients' advanced symptoms and required assistance in activities in daily living. The relationship of caregiver and care-recipient was strained in their roles transition. The complex healthcare system, insurance policies, and a lack of linguistically appropriate services aggravated their psychosocial distress. Chinese cultural norms on 'family harmony' hindered their seeking of social support. Prolonged caregiving stress led to physical and mental impairment, including poor sleep, depression, and chronic conditions. Participants described their caregiving experience as 'a lonely journey' with a pervasive sense of hopelessness and withdrawal; their distress process was positively or negatively influenced by their coping strategies. All participants were eager for any kind of support; especially culturally appropriate programs that could improve their caregiving skills, self-care, and access to services.

conclusionOur data suggest that Chinese American dementia caregivers, especially those with limited English proficiency, experience elevated psychosocial distress, which was aggravated by the barriers to social support and health services due to their immigrant and minority status. Culturally appropriate targeted intervention is urgently needed for this underserved and vulnerable population.

Indexed as

Alzheimer DiseaseCaregiversAsianHumansLonelinessQualitative ResearchAlzheimer’s disease and related dementiascaregiversconceptual frameworkpsychosocial distressqualitative study

Identifiers

PMID38038630
PMCPMC11931576
OpenAlexW4389222680

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.