ArticleFrontiers in research metrics and analytics2023
Indigenous Peoples and research: self-determination in research governance.
Article in Frontiers in research metrics and analytics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed.
- Artificial intelligence/machine learning in Alaska Native healthcare systems: symposium perspectives.International journal of circumpolar health · 2026Article
- Cultural, ethical, legal, and social considerations in genomics research with Indigenous Peoples: A scoping review.European journal of human genetics : EJHG · 2026Article
- Indigenous Research Sovereignty Within Academia: Challenges and Opportunities.SSM. Mental health · 2026Article
- Review
- A scoping review of Indigenous community-based research practices, guidelines, and ethical standards.Canadian journal of public health = Revue canadienne de sante publique · 2026Article
- A reservation-based clinical trial on inflammatory biomarkers in American Indian/Alaska Native cancer patients: Rationale and design of the Adaptive Prehab Approaches in Cancer Healing and Education (APACHE) Program.Contemporary clinical trials · 2026Article
- A global biodiversity use data infrastructure acknowledging indigenous and local knowledge.npj biodiversity · 2026Review
- A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction.Frontiers in genetics · 2026Article
- Ubuntu as a blueprint: learning ethical transdisciplinarity from African indigenous knowledge systems.Frontiers in research metrics and analytics · 2026Article
- Indigenous food environment and dietary patterns of Munda community of Jharkhand, India.BMC nutrition · 2025Article
- Trusted partners, community priorities, and data protections: requirements for precision medicine research with Alaska Native peoples.Journal of community genetics · 2025Article
- Resilience Informatics in Public Health: Qualitative Analysis of Conference Proceedings.JMIR formative research · 2025Article
- Governance of Indigenous data in open earth systems science.Nature communications · 2025Review
- Community-engaged artificial intelligence: an upstream, participatory design, development, testing, validation, use and monitoring framework for artificial intelligence and machine learning models in the Alaska Tribal Health System.Frontiers in artificial intelligence · 2025Article
- Linguistics and semiotics in indigenous and non-indigenous people's training and performance in nursing.Revista da Escola de Enfermagem da U S P · 2025Article
- Measuring Wellness Through Indigenous Partnerships: A Scoping Review.International journal of environmental research and public health · 2024Article
- Review
- Scientists and scientific journals should adhere to ethical standards for the use and reporting of data from Indigenous people.Diabetologia · 2024Article
- Genetic research with Indigenous Peoples: perspectives on governance and oversight in the US.Frontiers in research metrics and analytics · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
18 authors.
Funding
Abstract
Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the importance of Indigenous Data Governance to support Indigenous decision-making and control of data. Given that much data are generated from research, Indigenous research governance and Indigenous Data Governance overlap. In this paper, we broaden the concept of Indigenous Data Sovereignty by using the CARE Principles for Indigenous Data Governance to discuss how research legislation and policy adopted by Indigenous Peoples in the US set expectations around recognizing sovereign relationships, acknowledging rights and interests in data, and enabling Indigenous Peoples' participation in research governance.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.