Evidence map›Paper›PMID 38011809›Full record

ArticleTranslational behavioral medicine2024

Ethical, legal, and social implications of digital health: A needs assessment from the Society of Behavioral Medicine to inform capacity building for behavioral scientists.

Stephanie P Goldstein, Camille Nebeker, Rebecca Bartlett Ellis, Megan Oser

Open access · bronzeAbstract read
In one paragraph

Article in Translational behavioral medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
1.4field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 7 citations in OpenAlex.

  1. Pooled it
  2. Review
  3. Article
  4. Article
  5. Review
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 4 institutions in 1 country.

Stephanie P GoldsteinDepartment of Psychiatry and Human Behavior, Warren Alpert Medical School of Brown University & The Miriam Hospital/Weight Control and Diabetes Research Center, Providence, RI, USA.ORCID 0000-0002-9656-1675
Camille NebekerHerbert Wertheim School of Public Health and Human Longevity Science, University of California, San Diego, San Diego, CA, USA.ORCID 0000-0001-6819-1796
Rebecca Bartlett EllisDepartment of Science of Nursing Care, Indiana University School of Nursing, Bloomington, IN, USA.ORCID 0000-0001-5990-3595
Megan OserVatche and Tamar Manoukian Division of Digestive Diseases, University of California, Los Angeles, Los Angeles, CA, USA.ORCID 0000-0002-6260-7858
Brown University · USIndiana University Bloomington · USUniversity of California, Los Angeles · USUniversity of California San Diego · US

Funding

Youth suicide risk: interplay of sleep behavior and circadian timing with self-critical rumination and self- reassuranceP20GM139743 · NIGMS · EMMA PENDLETON BRADLEY HOSPITAL · PI Mary A Carskadon · 2021 to 2026
$13.0M
Using Multimodal Real-Time Assessment to Phenotype Dietary Non-Adherence Behaviors that Contribute to Poor Outcomes in Behavioral Obesity TreatmentR01DK132210 · NIDDK · MIRIAM HOSPITAL · PI Stephanie Paige Goldstein · 2022 to 2026
$3.1M
Optimizing Just-in-Time Adaptive Intervention to Improve Dietary Adherence in Behavioral Obesity Treatment: A Micro-randomized TrialR01HL153543 · NHLBI · MIRIAM HOSPITAL · PI GOLDSTEIN, STEPHANIE PAIGE · 2020 to 2023
$2.6M
NHLBI NIH HHS R01 HL153543NIDDK NIH HHS R01 DK132210NIDDK NIH HHS R01DK132210NIGMS NIH HHS P20 GM139743
6 · The paper itself

Abstract

The ethical, legal, and social implications (ELSIs) of digital health are important when researchers and practitioners are using technology to collect, process, or store personal health data. Evidence underscores a strong need for digital health ELSI training, yet little is known about the specific ELSI topic areas that researchers and practitioners would most benefit from learning. To identify ELSI educational needs, a needs assessment survey was administered to the members of the Society of Behavioral Medicine (SBM). We sought to identify areas of ELSI proficiency and training need, and also evaluate interest and expertise in ELSI topics by career level and prior ELSI training history. The 14-item survey distributed to SBM members utilized the Digital Health Checklist tool (see recode.health/tools) and included items drawn from the four-domain framework: data management, access and usability, privacy and risk to benefit assessment. Respondents (N = 66) were majority faculty (74.2%) from psychology or public health. Only 39.4% reported receiving "formal" ELSI training. ELSI topics of greatest interest included practices that supported participant engagement, and dissemination and implementation of digital tools beyond the research setting. Respondents were least experienced in managing "bystander" data, having discussions about ELSIs, and reviewing terms of service agreements and privacy policies with participants and patients. There is opportunity for formalized ELSI training across career levels. Findings serve as an evidence base for continuous and ongoing evaluation of ELSI training needs to support scientists in conducting ethical and impactful digital health research.

Indexed as

Behavioral MedicineDigital HealthCapacity BuildingHumansLearningNeeds Assessmentbehavioral medicinebehavioral sciencedigital healthethical, legal, and social implicationsresearch ethics

Identifiers

PMID38011809
PMCPMC10890818
OpenAlexW4389094690

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.