Evidence map›Paper›PMID 38010462›Full record

ArticleJournal of general internal medicine2024

Preferred Communication Strategies for People with Communication Disabilities in Health Care Encounters: a Qualitative Study.

Erin Hickey, Bernice Man, Kaila V T Helm, Steven Lockhart, Jennifer Duffecy, Megan A Morris

Open access · bronzeAbstract read
In one paragraph

Article in Journal of general internal medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
2.8field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 9 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Erin HickeyUniversity of Illinois at Chicago, Chicago, IL, USA. ehicke9@uic.edu.ORCID 0000-0002-1676-6866
Bernice ManUniversity of Illinois at Chicago, Chicago, IL, USA.
Kaila V T HelmIcahn School of Medicine at Mount Sinai, New York, NY, USA.
Steven LockhartAdult and Child Center for Health Outcomes Research and Delivery Service, University of Colorado School of Medicine and Children's Hospital Colorado, Aurora, CO, USA.
Jennifer DuffecyUniversity of Illinois at Chicago, Chicago, IL, USA.
Megan A MorrisAdult and Child Center for Health Outcomes Research and Delivery Service, University of Colorado School of Medicine and Children's Hospital Colorado, Aurora, CO, USA.
University of Illinois Chicago · USChildren's Hospital Colorado · USIcahn School of Medicine at Mount Sinai · US

Funding

Patient-Centered Outcomes Research Institute AD-2019C1-15642)
6 · The paper itself

Abstract

backgroundPeople with communication disabilities (CDs), which includes disabilities in speech, language, voice and/or hearing, experience health and healthcare disparities. A barrier to accessing high-quality, equitable care is the lack of effective communication between patients and their providers.

objectiveIn designing a patient-prompted tool to facilitate communication, we analyzed qualitative feedback on communication strategies and the experience of people with CDs, caregivers, and providers in healthcare encounters. We aimed to describe communication strategies that patients with CDs find most useful and optimize a tool for patients to share their communication strategy preferences during clinical encounters. While patient-provider communication is paramount in every interaction, we aimed to highlight the intricacies of optimizing communication for this population.

designWe performed a qualitative study utilizing focus groups and interviews with patients with CDs, their caregivers, and healthcare providers.

participantsA total of 46 individuals participated in focus groups or interviews; 26 participants self-reported a CD, nine were caregivers, and 11 were providers. Participants represented diverse types of CDs, including stuttering, aphasia, hearing loss, and people with autism or cerebral palsy who use assistive technology to communicate. APPROACH: Analysis of qualitative interview and focus group data was guided by a qualitative content analysis approach. KEY

resultsWe identified three themes: (1) While communication strategies should be individualized, participants agreed upon a consolidated list of best strategies and accommodations. We used this consolidated list to finalize tool development. (2) Patients and providers preferred disclosure of the CD and desired communication strategies before the appointment. (3) Providers often do not use communication strategies and accommodations during clinical encounters.

conclusionsFor patients with CDs, it is critical to acknowledge and document the CD and individualize communication strategies during healthcare visits to facilitate communication. Studies are needed to evaluate whether improved communication strategy usage leads to improved health outcomes for this population.

Indexed as

CommunicationCommunication DisordersFocus GroupsQualitative ResearchAdultAgedCaregiversFemaleHumansMaleMiddle AgedPatient PreferencePhysician-Patient RelationsYoung Adultcaregivercommunication disabilitiesprimary carestrategies

Identifiers

PMID38010462
PMCPMC11043277
OpenAlexW4389046978

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.