Evidence map›Paper›PMID 38009632›Full record

ArticlePediatric blood & cancer2024

How we approach sharing child-caregiver PRO disagreement.

Amy S Porter, Pamela S Hinds, Lori Wiener, Amanda L Thompson, Meaghann S Weaver

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Pediatric blood & cancer, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Amy S PorterDivision of Supportive and Palliative Care, Mass General for Children, Boston, Massachusetts, USA.
Pamela S HindsDepartment of Nursing Science, Professional Practice and Quality, Children's National Hospital, Washington, District of Columbia, USA.ORCID 0000-0001-6491-6649
Lori WienerPediatric Oncology Branch, Center for Cancer Research, National Cancer Institute (NCI), Bethesda, Maryland, USA.ORCID 0000-0002-9573-8870
Amanda L ThompsonLife with Cancer, Inova Schar Cancer Institute, Fairfax, Virginia, USA.
Meaghann S WeaverDepartment of Pediatrics, University of Nebraska, Omaha, Nebraska, USA.ORCID 0000-0003-0340-9533

Funding

Intramural NIH HHS Z99 CA999999NCI NIH HHS
6 · The paper itself

Abstract

Researchers use patient-reported outcomes (PRO) to capture the patient experience, and in pediatrics, parent report of symptom and function often accompanies the child's assessment. Children with cancer and their family caregivers frequently evaluate symptom burden and functional status differently. Child-caregiver PRO disagreement often worries pediatric oncology clinicians, who do not know how to best approach sharing it with families. Openly discussing differences in symptom and functional status reporting is a crucial element of supporting families and can improve family harmony throughout the child's illness journey. This paper offers strategies and language for communicating with families about PRO disagreement.

Indexed as

CaregiversNeoplasmsChildHumansPatient Reported Outcome Measuresfamily supportpediatric oncologyPRO

Identifiers

PMID38009632
PMCPMC10842848

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.