Evidence map›Paper›PMID 37998293›Full record

ArticleInternational journal of environmental research and public health2023

Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire.

Inês Genrinho, Pedro L Ferreira, Tânia Santiago, Adriana Carones, Carolina Mazeda, Anabela Barcelos, Tiago Beirão, Flávio Costa, Inês Santos, Maura Couto and 3 more

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Inês GenrinhoRheumatology Department, Tondela Viseu Hospital Centre, 3504-509 Viseu, Portugal.
Pedro L FerreiraCentre for Health Studies and Research, Faculty of Economics, University of Coimbra, 3004-512 Coimbra, Portugal.ORCID 0000-0002-9448-9542
Tânia SantiagoRheumatology Department, Hospital and University Centre of Coimbra, 3004-512 Coimbra, Portugal.
Adriana CaronesRheumatology Department, Hospital and University Centre of Coimbra, 3004-512 Coimbra, Portugal.ORCID 0000-0001-6853-7670
Carolina MazedaRheumatology Department, Baixo Vouga Hospital Centre, 3810-164 Aveiro, Portugal.
Anabela BarcelosRheumatology Department, Baixo Vouga Hospital Centre, 3810-164 Aveiro, Portugal.ORCID 0000-0002-4116-8964
Tiago BeirãoRheumatology Department, Vila Nova de Gaia Espinho Hospital Center, 4434-502 Vila Nova de Gaia, Portugal.
Flávio CostaRheumatology Department, Vila Nova de Gaia Espinho Hospital Center, 4434-502 Vila Nova de Gaia, Portugal.
Inês SantosRheumatology Department, Tondela Viseu Hospital Centre, 3504-509 Viseu, Portugal.
Maura CoutoRheumatology Department, Tondela Viseu Hospital Centre, 3504-509 Viseu, Portugal.
Maria RatoRheumatology Department, Hospital Centre of São João, 4200-319 Porto, Portugal.
Georgina TerrosoRheumatology Department, Hospital Centre of São João, 4200-319 Porto, Portugal.
Paulo MonteiroRheumatology Department, Tondela Viseu Hospital Centre, 3504-509 Viseu, Portugal.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The Health Assessment Questionnaire Disability Index (HAQ-DI) was completed with five visual analog scales to assess systemic sclerosis (SSc) called Scleroderma HAQ (SHAQ). We performed a validation of the European Portuguese version of SHAQ for patients with SSc. Patients with different forms of SSc from five Hospital Centers were invited. The reliability of the Portuguese SHAQ was evaluated by internal consistency and by test-retest reliability. Content validity was checked by two rheumatologists and by a panel of patients. Construct validity was assessed by structural validity and by known-groups hypothesis tests. Criterion validity was addressed with selected dimensions from the UCLA GIT 2.0, the SF-36v2, and the EuroQoL EQ-5D-5L. A total of 102 SSc patients agreed to participate, 31 of which answered to the retest. HAQ-DI demonstrated high internal consistency reliability (α = 0.866) and SHAQ also showed high test-retest reliability (ICC 0.61-0.95). We evidenced the unidimensionality of all VASs. HAQ-DI scores were worse in males, patients older than 65 years, and individuals with a diffuse form of SSc. Criterion validity was mainly evidenced through the correlation between the HAQ-DI and SF-36v2 physical summary measure (r = -0.688) and EQ-5D-5L index score (r = -0.723). Likewise, the SHAQ overall disease severity VAS was also correlated with SF-36v2 physical summary measure (r = -0.628). Mental score correlations were smaller. With the exception of the Raynaud's VAS, all the other VASs correlated well with similar clinical variables. This paper provides evidence to demonstrate how reliable and valid the European Portuguese version of SHAQ is, to be used in SSc patients to assess the clinical severity under the perspective of patients.

Indexed as

Scleroderma, SystemicDisability EvaluationHumansMalePortugalQuality of LifeReproducibility of ResultsSeverity of Illness IndexSurveys and Questionnairesoutcome assessmentquality of lifeSHAQsystemic sclerosis

Identifiers

PMID37998293
PMCPMC10671070

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.