Evidence map›Paper›PMID 37997006›Full record

ArticleDeveloping world bioethics2024

Ethical challenges of conducting and reviewing human genomics research in Malaysia: An exploratory study.

Teong Win Zee, Mohammad Firdaus Bin Abdul Aziz, Phan Chia Wei

Abstract read
In one paragraph

Article in Developing world bioethics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Mohammad Firdaus Bin Abdul AzizORCID 0000-0003-2426-5284

Funding

Strengthening the Master of Health Research Ethics Training ProgramR25TW010891 · FIC · UNIVERSITY OF MALAYA · PI Nik Sherina Hanafi, Adeeba Kamarulzaman · 2018 to 2026
$2.3M
FIC NIH HHSFIC NIH HHS R25 TW010891
6 · The paper itself

Abstract

Even though there is a significant amount of scholarly work examining the ethical issues surrounding human genomics research, little is known about its footing in Malaysia. This study aims to explore the experience of local researchers and research ethics committee (REC) members in developing it in Malaysia. In-depth interviews were conducted from April to May 2021, and the data were thematically analysed. In advancing this technology, both genomics researchers and REC members have concerns over how this research is being developed in the country especially the absence of a clear ethical and regulatory framework at the national level as a guidance. However, this study argues that it is not a salient issue as there are international guidelines in existence and both researchers and RECs will benefit from a training on the guidelines to ensure genomics research can be developed in an ethical manner.

Indexed as

Ethics Committees, ResearchEthics, ResearchGenomicsBiomedical ResearchGenetic ResearchHumansMalaysiaResearch Personneldeveloping countriesgenetic datagenomic researchhuman genomeMalaysiaresearch ethics

Identifiers

PMID37997006
PMCPMC11111594

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.