Evidence map›Paper›PMID 37996882›Full record

ArticleResearch involvement and engagement2023

Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation.

Maria Pierce, Louise Foley, Bridget Kiely, Aisling Croke, James Larkin, Susan M Smith, Barbara Clyne, Edel Murphy

Abstract read
In one paragraph

Article in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

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  7. Involving Knowledge Users in Health Services Research: Collective Reflections and Learning From a National Evaluation of Recurrent Miscarriage Services.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Maria PierceSchool of Social Policy, Social Work and Social Justice, University College Dublin, Dublin, Ireland.
Louise FoleySchool of Allied Health, University of Limerick, Limerick, Ireland.
Bridget KielyDepartment of General Practice, RCSI University of Medicine and Health Sciences, Dublin, Ireland.
Aisling CrokeDepartment of General Practice, RCSI University of Medicine and Health Sciences, Dublin, Ireland.
James LarkinDepartment of General Practice, RCSI University of Medicine and Health Sciences, Dublin, Ireland.
Susan M SmithDiscipline of Public Health and Primary Care, Trinity College Dublin, Dublin, Ireland.
Barbara ClyneDepartment of General Practice, RCSI University of Medicine and Health Sciences, Dublin, Ireland.
Edel MurphyPPI Ignite Network, University of Galway, Galway, Ireland. edel.murphy@universityofgalway.ie.

Funding

Health Research Board CDA-2018-003
6 · The paper itself

Abstract

backgroundIncorporating Public and Patient Involvement (PPI) into doctoral research is valued by PhD funders and scholars. Providing early career researchers with appropriate training to develop skills to conduct meaningful PPI involvement is important. The Health Research Board (HRB) Collaborative Doctoral Award in MultiMorbidity programme (CDA-MM) embedded formal PPI training in its structured education. The four participating PhD scholars established a PPI panel comprising people living with two or more chronic conditions, presenting an opportunity for experiential PPI training. This study aimed to evaluate the process and impact of embedding PPI training in a structured PhD programme.

methodsThis study was a longitudinal mixed-methods evaluation, conducted over 24 months (June 2020 to June 2022). A process evaluation provided an understanding of how PPI was embedded and explored the experiences of key stakeholders involved. An impact evaluation assessed the impact of embedding PPI training in the programme. Participants included PhD scholars, PPI contributors and PhD supervisors. The data collection and analysis was led by an independent researcher not aligned with the CDA-MM. Data collection methods included five focus groups, individual interviews (n = 6), an impact log, activity logs and group reflections. Qualitative data were analysed using thematic and content analysis and quantitative data analysed using descriptive statistics.

resultsEmbedding formal and experiential PPI training in a structured PhD programme is feasible. Both approaches to training are fundamental to building PPI capacity. Involvement of an experienced and knowledgeable PPI lead throughout is perceived as critical. The PPI panel approach offered a good example of embedded consultation and worked well in a structured PhD programme, providing PhD scholars with ample opportunities for learning about PPI and its implementation. For PPI contributors, culture was the most important indicator of quality and was positively evaluated. Key roles for PhD supervisors were identified. Embedding formal and experiential PPI training impacted positively on many different aspects of individual PhD research projects and on PhD scholars as researchers. There were positive impacts for PPI contributors and PhD supervisors.

conclusionsEmbedding formal and experiential PPI training in a structured PhD programme is a novel approach. The evaluation has identified a number of lessons that can inform future doctoral programmes seeking to embed formal and experiential PPI training.

Indexed as

Doctoral researchEvaluationMultimorbidityPublic and patient involvement

Identifiers

PMID37996882
PMCPMC10668398

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.