Evidence map›Paper›PMID 37994567›Full record

ArticleJournal of diabetes science and technology2024

The Design of the Electronic Health Record in Type 1 Diabetes Centers: Implications for Metrics and Data Availability for a Quality Collaborative.

Donna Eng, Emma Ospelt, Brian Miyazaki, Ryan McDonough, Justin A Indyk, Risa Wolf, Sarah Lyons, Anna Neyman, Naomi R Fogel, Marina Basina and 5 more

Abstract read
In one paragraph

Article in Journal of diabetes science and technology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Donna EngPediatric Endocrinology, Helen DeVos Children's Hospital, Michigan State University College of Human Medicine, Grand Rapids, MI, USA.
Emma OspeltQuality Improvement and Population Health, T1D Exchange, Boston, MA, USA.ORCID 0000-0002-4723-001X
Brian MiyazakiCenter for Endocrinology, Diabetes and Metabolism, Children's Hospital Los Angeles, Los Angeles, CA, USA.
Ryan McDonoughPediatric Endocrinology and Diabetes, Children's Mercy Hospitals and Clinics, Kansas City, MO, USA.ORCID 0000-0003-1909-3027
Justin A IndykDivision of Endocrinology, The Ohio State University College of Medicine and Nationwide Children's Hospital, Columbus, OH, USA.
Risa WolfDepartment of Pediatrics, Division of Pediatric Endocrinology, Johns Hopkins Medicine, Baltimore, MD, USA.
Sarah LyonsDepartment of Diabetes and Endocrinology, Texas Children's Hospital, Baylor College of Medicine, Houston, TX, USA.
Anna NeymanDepartment of Pediatrics, University Hospitals Rainbow Babies & Children's Hospital and Case Western Reserve University, Cleveland, OH, USA.
Naomi R FogelDivision of Pediatric Endocrinology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Marina BasinaDivision of Endocrinology, Gerontology and Metabolism, Stanford University, Stanford CA, USA.
Mary Pat GallagherThe Pediatric Diabetes Center, Hassenfeld Children's Hospital at NYU Langone, New York, NY, USA.
Osagie EbekozienQuality Improvement and Population Health, T1D Exchange, Boston, MA, USA.ORCID 0000-0002-8473-249X
G Todd AlonsoBarbara Davis Center, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.ORCID 0000-0002-5676-761X
Nana-Hawa Yayah JonesDivision of Endocrinology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Joyce M LeePediatric Endocrinology, Susan B. Meister Child Health Evaluation and Research Center, Ann Arbor, MI, USA.ORCID 0000-0002-8147-5168

Funding

Regional Pilot And Feasibility Study Grants ProgramP30DK020572 · NIDDK · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI DAVID P OLSON · 2013 to 2026
$24.3M
Pilot and Feasibility (P and F) ProgramP30DK089503 · NIDDK · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Karen Eileen Peterson · 2010 to 2026
$20.3M
Research BaseP30DK092926 · NIDDK · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI MARY ELLEN MICHELE HEISLER, ADESUWA B OLOMU · 2011 to 2026
$10.0M
NIDDK NIH HHS P30 DK020572NIDDK NIH HHS P30 DK089503NIDDK NIH HHS P30 DK092926
6 · The paper itself

Abstract

backgroundSystematic and comprehensive data acquisition from the electronic health record (EHR) is critical to the quality of data used to improve patient care. We described EHR tools, workflows, and data elements that contribute to core quality metrics in the Type 1 Diabetes Exchange Quality Improvement Collaborative (T1DX-QI).

methodWe conducted interviews with quality improvement (QI) representatives at 13 T1DX-QI centers about their EHR tools, clinic workflows, and data elements.

resultsAll centers had access to structured data tools, nine had access to patient questionnaires and two had integration with a device platform. There was significant variability in EHR tools, workflows, and data elements, thus the number of available metrics per center ranged from four to 17 at each site. Thirteen centers had information about glycemic outcomes and diabetes technology use. Seven centers had measurements of additional self-management behaviors. Centers captured patient-reported outcomes including social determinants of health (n = 9), depression (n = 11), transition to adult care (n = 7), and diabetes distress (n = 3). Various stakeholders captured data including health care professionals, educators, medical assistants, and QI coordinators. Centers that had a paired staffing model in clinic encounters distributed the burden of data capture across the health care team and was associated with a higher number of available data elements.

conclusionsThe lack of standardization in EHR tools, workflows, and data elements captured resulted in variability in available metrics across centers. Further work is needed to support measurement and subsequent improvement in quality of care for individuals with type 1 diabetes.

Indexed as

Diabetes Mellitus, Type 1AdultBenchmarkingElectronic Health RecordsHumansPatient Care TeamQuality Improvementelectronic health recordmetricsquality improvementtype 1 diabetesworkflows

Identifiers

PMID37994567
PMCPMC10899848

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.