ArticleQualitative health research2024
Living With Endometriosis: A Reflexive Thematic Analysis Examining Women's Experiences With the Irish Healthcare Services.
Article in Qualitative health research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.
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Who cites it
13 citing papers in PubMed, 2 syntheses or guidelines pooled it, 20 citations in OpenAlex.
- Women's Causal Beliefs About Their Pelvic Pain: A Systematic Review and Meta-Ethnography.Pain practice : the official journal of World Institute of Pain · 2026Pooled it
- Experiences of pain communication in endometriosis: A meta-synthesis.Acta obstetricia et gynecologica Scandinavica · 2025Pooled it
- What do we know about medical invalidation and related concepts? - A scoping review and thematic analysis about the definitions, measurements, causes, consequences and potential solutions for medical invalidation.BMC health services research · 2026Article
- "Why Aren't You Listening?": How Experiences of Endometriosis, Medical Dismissal, and Psychological Distress Should Influence Assessment and Interventions.Healthcare (Basel, Switzerland) · 2026Article
- 'Not Just Bad Periods': Survey of Aotearoa New Zealand Endometriosis Patients on Their Perspectives on the Impact of Endometriosis Awareness.The Australian & New Zealand journal of obstetrics & gynaecology · 2026Article
- Patient-Centred Perspectives on Diagnostic Strategies for Endometriosis: A Qualitative Study.BJOG : an international journal of obstetrics and gynaecology · 2026Article
- Barriers and Facilitators Affecting the Care of Patients with Endometriosis: A Scoping Review.Geburtshilfe und Frauenheilkunde · 2026Article
- Information-Seeking Behaviours of CALD Women with Endometriosis in Australia: A Qualitative Study.International journal of environmental research and public health · 2026Article
- How Women with Endometriosis Use Social Media for Support and Self-Management: An Analysis of Reddit Content.International journal of environmental research and public health · 2025Article
- Women's experiences of living with chronic pain: A qualitative meta-synthesis.British journal of health psychology · 2025Article
- "Take me seriously": A qualitative interview study exploring healthcare experiences of endometriosis patients.PloS one · 2025Article
- Women's experiences of seeking healthcare for abdominal pain in Ireland: a qualitative study.BMC women's health · 2024Article
- "I have to fight for them to investigate things": a qualitative exploration of physical and mental healthcare for women diagnosed with mental illness.Frontiers in public health · 2024Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Endometriosis is an incurable chronic condition associated with debilitating pain and subfertility, affecting 1 in 10 women. The current study aims to explore the perceptions and experiences of women with endometriosis regarding the diagnosis, support and treatment options available in Ireland. It will further determine whether additional supports or improvements are needed to care well and effectively for women with this disease in the Irish healthcare system. A qualitative study design was deemed most suitable. Twenty participants, women aged 18 and over with a diagnosis of endometriosis and experience of the Irish healthcare system, were recruited through purposeful sampling to complete semi-structured, one-to-one online interviews. Data was analysed using reflexive thematic analysis, and five themes were identified: 'dismissive attitudes normalising severe pain', 'inadequate health system', 'the impact of delayed diagnoses', 'lack of education and awareness' and 'navigating ignorance, taboo and societal views'. Insights into the experiences and needs of women diagnosed with endometriosis in Ireland were gained, and we discuss the implications of our findings for Irish healthcare services with reference to feminist health equity and recent national action plans. We propose a series of recommendations for patient-centred care models including increased access to training and education, as well as support for longer-term chronic pain management.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.