ArticleEuropean journal of public health2024
Variation in follow-up for children born very preterm in Europe.
Article in European journal of public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 15 citations in OpenAlex.
- RIGHTS principles for early intervention: right care at the right time for every infant, child and family in low and middle-income countries.BMJ paediatrics open · 2026Review
- Healthcare journey of preterm-born adults with respiratory disease: the EMPOWER survey.ERJ open research · 2026Article
- Real-world insights into neurodevelopmental outcomes amongst people with congenital hyperinsulinism.Orphanet journal of rare diseases · 2026Article
- Neurologic Evaluation of Premature Infants at Term Equivalent Age: Too Early or Too Late? A Scoping Review.Medicina (Kaunas, Lithuania) · 2026Article
- Neurodevelopmental and social determinants of school support received by children born preterm.Pediatric research · 2026Article
- Follow-up of neonatal chronic respiratory disease: an update based on the current evidence.European journal of pediatrics · 2026Review
- Developmental Trajectories of Very Preterm Infants and Implications for Routine Neurodevelopmental Follow-Up.Acta paediatrica (Oslo, Norway : 1992) · 2026Article
- Artificial intelligence in nutritional health: sustainable consumers' right to quality of life with special reference to youth.Frontiers in public health · 2026Article
- Post-Discharge Trajectories of Romanian Premature Infants: A Cross-Sectional Analysis of Associated Factors.Children (Basel, Switzerland) · 2025Article
- Factors influencing participation in home, school, and community settings by 6- to 9-year-old children born preterm: a qualitative descriptive study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Health-related quality of life at 5 years of age for children born very preterm with congenital anomalies: a multi-national cohort study.Pediatric research · 2025Article
- A Survey on the Organization and Operation of Level II/III Neonatal Intensive Care Units in Greece: A Comparison Between 2004 and 2022.Children (Basel, Switzerland) · 2025Article
- Parental report of language, attention and executive functions at two years: correlational structure of measures and applications to prematurity.Wellcome open research · 2025Article
- Maternal Wellbeing Five Years after a Very Preterm Delivery: Prevalence and Influencing Factors in a European Cohort.Children (Basel, Switzerland) · 2023Article
Corrections and comments
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Authors and funding
19 authors at 14 institutions in 11 countries.
Funding
Abstract
backgroundChildren born very preterm (<32 weeks of gestation) face high risks of neurodevelopmental and health difficulties compared with children born at term. Follow-up after discharge from the neonatal intensive care unit is essential to ensure early detection and intervention, but data on policy approaches are sparse.
methodsWe investigated the characteristics of follow-up policy and programmes in 11 European countries from 2011 to 2022 using healthcare informant questionnaires and the published/grey literature. We further explored how one aspect of follow-up, its recommended duration, may be reflected in the percent of parents reporting that their children are receiving follow-up services at 5 years of age in these countries using data from an area-based cohort of very preterm births in 2011/12 (N = 3635).
resultsBetween 2011/12 and 22, the number of countries with follow-up policies or programmes increased from 6 to 11. The policies and programmes were heterogeneous in eligibility criteria, duration and content. In countries that recommended longer follow-up, parent-reported follow-up rates at 5 years of age were higher, especially among the highest risk children, born <28 weeks' gestation or with birthweight <1000 g: between 42.1% and 70.1%, vs. <20% in most countries without recommendations.
conclusionsLarge variations exist in follow-up policies and programmes for children born very preterm in Europe; differences in recommended duration translate into cross-country disparities in reported follow-up at 5 years of age.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.