Evidence map›Paper›PMID 37978476›Full record

ArticleBMC psychiatry2023

Affectivity, sexuality, and autism spectrum disorder: qualitative analysis of the experiences of autistic young adults and their families.

Jordi Torralbas-Ortega, Judith Roca, Ruben Coelho-Martinho, Zaloa Orozko, Montserrat Sanromà-Ortiz, Victoria Valls-Ibáñez

Open access · goldAbstract read
In one paragraph

Article in BMC psychiatry, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
1.1field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 6 citations in OpenAlex.

  1. Pooled it
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Jordi Torralbas-OrtegaHospital de la Santa Creu i Sant Pau and Nursing care Research Group. Research Institute Sant Pau (IIB SANT PAU), Barcelona, 08041, Spain.ORCID 0000-0002-9423-9332
Judith RocaDepartment of Nursing and Physiotherapy and Health Education, Nursing, Sustainability and Innovation Research Group (GREISI), Faculty of Nursing and Physiotherapy, University of Lleida, Lleida, 25199, Spain. Judith.roca@udl.cat.ORCID 0000-0002-0645-1668
Ruben Coelho-MartinhoDepartment of Mental Health Nursing, Nostra Senyora de Meritxell Hospital, Escaldes-Engordany, AD700, Andorra.ORCID 0009-0007-5216-4102
Zaloa OrozkoOsona Salut Mental, Consorci Hospitalari de Vic, Vic, 08500, Spain.ORCID 0009-0005-1578-8042
Montserrat Sanromà-OrtizBlanquerna School of Health Science, Ramon Llull University, Barcelona, 08025, Spain.ORCID 0000-0001-7472-6494
Victoria Valls-IbáñezHealth Center La Serra, Catalan Health Institute, Sabadell, 08208, Spain.ORCID 0000-0002-0799-9502
Universitat de Lleida · ESHospital de Sant Pau · ESHospital Universitari de Vic · ES

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAutistic people have communication, sensorial, and social difficulties, which on many occasions, make their adaptation on the sexual and affective levels difficult. For this reason, it is important to know the opinion of individuals with autism spectrum disorders (ASD) and their families, to offer this perspective to professionals to facilitate adapted health education programs in mental health units.

methodsThis qualitative descriptive design presents the experiences of autistic individuals and their families in relation to the affective-sexual experiences from individual, family, and social perspectives. Two focus group sessions were held with eight family members and seven individual semi-structured interviews with autistic young adults. The transcripts were qualitatively analysed using content analysis.

resultsFour themes (Family and social dynamic; Social behaviour of the autistic individual; Affective-sexual relationships; Addressing affective and sex education) and 13 related categories emerged from these results. Communication and social interaction problems act as barriers for young adults when developing affective-sexual relationships, leading to the emergence of negative feelings and experiences that reinforce avoidance behaviours, further intensifying their difficulties in interacting with others. Families, especially mothers, exhibit a poor perception of their ability to provide affective-sexual guidance, leading to anxiety and frustration. There are also reports of poor sex education and lack of support systems. CONCLUSIONS AND IMPLICATIONS FOR PRACTICE: The experiences of young people and their families are sometimes conflicting when it comes to affectivity and sexuality, but the parental role emerges as relevant in the sex education process. Families play a pivotal role in sex education, which is why professionals should provide them with support and information through health education programmes, foster empathetic communication and promote sexual and emotional development that is adapted to the characteristics and interests of autistic people.

Indexed as

Autism Spectrum DisorderAutistic DisorderAdolescentFemaleHumansMothersSexual BehaviorSexualityYoung AdultAdolescenceAffectivityAutismAutism Spectrum disordersFamiliesSexuality

Identifiers

PMID37978476
PMCPMC10656892
OpenAlexW4388760012

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.