ArticleQualitative health research2024
'A Constant Black Cloud': The Emotional Impact of Informal Caregiving for Someone With a Lower-Grade Glioma.
Article in Qualitative health research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 12 citations in OpenAlex.
- Patient perspectives on diagnostic uncertainty and novel diagnostic tests in neuro-oncology.Neuro-oncology practice · 2026Article
- Bereaved informal caregivers' experiences with a Canadian home hospice program: a qualitative study.BMC palliative care · 2026Article
- "The Day He Fell Ill, We Turned on a Switch…Now, Everything Is My Responsibility": Scoping Review of Qualitative Studies Among Partners of Patients with Cancer.Current oncology (Toronto, Ont.) · 2026Review
- The CARING intervention for neuro-oncology family caregivers: Randomized controlled trial feasibility, eSNAP/caregiver navigation engagement, and acceptability.Neuro-oncology practice · 2025Article
- Well-being and coping: Key aspects of unmet need of people living with glioma.Neuro-oncology practice · 2025Article
- Aiming for survival: a qualitative single case study of support for family members across the care process in outpatient colorectal cancer care.BMC cancer · 2025Article
- "It's a delicate dance": How informal caregivers experience the role and responsibilities of supporting someone living with a lower-grade glioma.Neuro-oncology practice · 2025Article
- Exploring the role of psychological flexibility in relationship functioning among couples coping with prostate cancer: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Understanding supported self-management for people living with a lower-grade glioma: Implementation considerations through the lens of normalisation process theory.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- "It changes everything": Understanding how people experience the impact of living with a lower-grade glioma.Neuro-oncology practice · 2024Article
- High costs, low quality of life, reduced survival, and room for improving treatment: an analysis of burden and unmet needs in glioma.Frontiers in oncology · 2024Review
Corrections and comments
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Authors and funding
10 authors at 6 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Those closest to people with lower-grade gliomas (LGGs) often assume the role of informal caregiver (IC). The additional responsibilities mean ICs of people with cancer can experience adverse impacts on their own lives. We explored the emotional impact of informal caregiving for people with LGGs. This was a descriptive qualitative study within the multi-method Ways Ahead project. We conducted semi-structured interviews with individuals from the United Kingdom, who currently, or in the past 5 years, informally cared for someone with an LGG. Interviews encompassed experiences of emotional impact as a consequence of caregiving for someone with an LGG. Inductive thematic analysis was undertaken. We interviewed 19 ICs (mean age 54.6 years; 14 females, 5 males). Participants reported substantial emotional impact. Four themes and associated subthemes were generated:
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.