Evidence map›Paper›PMID 37963035›Full record

ArticleMedical care2023

Avenues for Strengthening PCORnet's Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR).

Lemuel R Waitman, Leonard Charles Bailey, Michael J Becich, Katherine Chung-Bridges, Stacie B Dusetzina, Jessi U Espino, William R Hogan, Rainu Kaushal, James C McClay, James Greg Merritt and 4 more

Abstract read
In one paragraph

Article in Medical care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. A Review of the Importance and Relevance of Real-World Data and Real-World Evidence.Medical science monitor : international medical journal of experimental and clinical research · 2025
    Review
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Lemuel R WaitmanDepartment of Biomedical Informatics, Biostatistics, and Medical Epidemiology, University of Missouri School of Medicine, Greater Plains Collaborative, PCORnet Clinical Research Network, Columbia, MO.
Leonard Charles BaileyChildren's Hospital of Philadelphia, Philadelphia.
Michael J BecichUniversity of Pittsburgh School of Medicine, Pittsburgh, PA.
Katherine Chung-BridgesHealth Choice Network, Miami, FL.
Stacie B DusetzinaVanderbilt University School of Medicine, Nashville, TN.
Jessi U EspinoUniversity of Pittsburgh, Pittsburgh, PA.
William R HoganMedical College of Wisconsin, Milwaukee, WI.
Rainu KaushalWeill Cornell University School of Medicine, New York, NY.
James C McClayUniversity of Missouri School of Medicine, Columbia, MO.
James Greg MerrittPatient is Partner LLC, Brighton, MI.
Russell L RothmanVanderbilt University School of Medicine, Nashville, TN.
Elizabeth A ShenkmanUniversity of Florida College of Medicine, Gainesville, FL.
Xing SongUniversity of Missouri School of Medicine, Columbia, MO.
Elizabeth NaumanLouisiana Public Health Institute, New Orleans, LA.

Funding

Washington University Center for Diabetes Translation Research P30DK092950 · NIDDK · WASHINGTON UNIVERSITY · PI Ross C Brownson, Debra Haire-Joshu · 2011 to 2026
$11.7M
NIDDK NIH HHS P30 DK092950
6 · The paper itself

Abstract

PCORnet, the National Patient-Centered Clinical Research Network, provides the ability to conduct prospective and observational pragmatic research by leveraging standardized, curated electronic health records data together with patient and stakeholder engagement. PCORnet is funded by the Patient-Centered Outcomes Research Institute (PCORI) and is composed of 8 Clinical Research Networks that incorporate at total of 79 health system "sites." As the network developed, linkage to commercial health plans, federal insurance claims, disease registries, and other data resources demonstrated the value in extending the networks infrastructure to provide a more complete representation of patient's health and lived experiences. Initially, PCORnet studies avoided direct economic comparative effectiveness as a topic. However, PCORI's authorizing law was amended in 2019 to allow studies to incorporate patient-centered economic outcomes in primary research aims. With PCORI's expanded scope and PCORnet's phase 3 beginning in January 2022, there are opportunities to strengthen the network's ability to support economic patient-centered outcomes research. This commentary will discuss approaches that have been incorporated to date by the network and point to opportunities for the network to incorporate economic variables for analysis, informed by patient and stakeholder perspectives. Topics addressed include: (1) data linkage infrastructure; (2) commercial health plan partnerships; (3) Medicare and Medicaid linkage; (4) health system billing-based benchmarking; (5) area-level measures; (6) individual-level measures; (7) pharmacy benefits and retail pharmacy data; and (8) the importance of transparency and engagement while addressing the biases inherent in linking real-world data sources.

Indexed as

MedicarePatient Outcome AssessmentAgedHumansOutcome Assessment, Health CarePatient-Centered CareProspective StudiesUnited States

Identifiers

PMID37963035
PMCPMC10635342

What OpenQuestion holds

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LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.